Haven't penned an update for quite some time for fundraising. Now that I am at the mid point of treatment I thought that I update to all of my donors and thank you for your support. Without the support of so many family and friends, and frankly many that I haven't met and don't know, but out of their goodness of heart are making this treatment possible. I humbly and from the bottom of my heart say THANK YOU! My treatment has been going fairly well so far with only one slight set back. Having said that it means no negative surprises and that is a big win going through a major medical issue such as a transplant. Woot! I've met some really great people here who are also patients fighting the same disease and getting the same treatment. I am seeing first hand how difficult this treatment is on some people, which is why I am very cognizant on how lucky I am tolerating as well as I am. My heart pours out to the ones having difficulty. I don't get the sense from a single person that their is a regret for making this decision for treatment. We are all hell bent on getting rid of MS, regardless of the temporary uncomfortable feelings of treatment. As you are all aware this treatment is very expensive and is not covered my insurance. Many of the patients getting treatment was able to raise the entire cost of treatment through fundraisers and such. We fell woefully short, but i felt that i was not going to be denied treatment to maintain a quality of life that I so dearly want. I'm sorry to once again ask for some donations to help offset the cost of this treatment. We raised roughly $8000 of the estimated $65,000 needed to cover all expenses. The treatment cost is $50,000, extra costs included, plane fares, hotel, visas, lost wages, etc. We are not expecting to have others foot the bill for the entire endeavor. Anyone who could help in any way is so greatly appreciated by us. Had some conversations with other patients and to a T they told me that they they outpouring in support had a new appreciation in humanity. It's very touching and emotional for chronically ill patient to hear that. As a side note. All contributions are made to Help Hope Live which is a 501cs non profit and contributions are tax deductible. If you are looking for a tax deduction this year and would love to help than it is a double win.
Mar 02, 2016
My journey was written about in the local newspaper yesterday.