Hi Everyone! We are officially now in the 8th month post aHSCT and Michael just received his 9 month immunizations. That means his blood work is where is should be and a little better. For now, Michael is resting and gaining a little bit of strength. He is able to move under his own direction without the aid of a wheel chair and uses a cane to help with balance and foot drop issues that are still evident. Recently, he was fitted for a "brace" for his right leg. This helps pull his right toe up when he walks and it seems to be helping him a lot. We are excited about his new walking "tool". We are very grateful for this opportunity and all of the help of our supporters financially and emotionally. Without everyone, we know that our path would be more difficult going forward and that this opportunity would not have been realized. Again, from the bottom of our hearts, thank you. Love to all and hope your lives are going well for you and your loved ones. Hugs, Holly & Michael
Sep 22, 2016
It has been a long time since I have updated all of our supporters. I apologize for the wait and thank you for your patience, love and understanding.
We arrived home mid-July after a long journey from Jerusalem via Tel Aviv and Frankfurt. Michael had a rough plane ride in “coach” and I don’t recommend this section of the plane for anyone undergoing medical treatment. For the first two weeks Michael seemed to be getting stronger and doing more and more on his own. He drove, went to yoga, walked with little assistance short distances, etc. He was on top of the world and his eyes were still sparkling.
The first week of August brought unwanted change; it was rough. Michael’s ability to walk evaporated as his new found legs began to buckle under him just standing for a moment or trying to transfer from chair to bed. He was using a wheelchair full time. During this decline of his mobility, my sister Kathy passed away. We have been struggling with the loss of her in our lives and miss her deeply. For her services and so that Michael could attend the ceremony at the gravesite, we decided that we would buy a scooter. He also needed to get around on his own and gain some independence. Three weeks of not walking was enough to let us know that scooters were made for a reason.
With delight, I report the scooter session in Michael’s recovery for the most part is over (unless long distance is required). His legs have rebounded and he is able to walk short distances unassisted or with a cane. His bloodwork is remarkable according to the hematologist he is an amazing subject, second to none. This week, I feel like I can now say that we have made strides and reached a turning point. He actually walked up 16 stairs to our second story yesterday!
The healing process can take up to two years and we know now that speeding up the process doesn’t happen by doing too much. Michael needs to take it easy, keep up the PT/OT/yoga, rest when he is tired and stay positive. We are finally back on track and feeling good about his recovery.
Without the love and support of all of our family and friends, we would not be here. Our debt and gratitude to you is eternal. We wish you all a life full of love, happiness, good health and peace.