My treatment date has changed! The hospital was nice enough to swap my date with a local patient who was scheduled for later in September. This means there is a little more time to get the money together. My new treatment date is September 28th, still very soon! The date can't be changed again.
Here's a video of a BBC news story about someone else that got the same treatment I'm due to receive in a few weeks. If you know anyone else with MS please share it with them. Not enough people know that this treatment is available and works.
The fundraising continues. We are over 65% of the way there! Thank you again, everyone, for all the support. Sorry to cut this short, but I've had terrible neck pain and nausea today, and I'm not feeling well. Hoping to be able to sleep it off.
Aug 25, 2016
My dad and I were interviewed by my hometown newspaper in Florida.
It's been 12 days since I got out of the hospital after my last MS attack. Unfortunately, my symptoms seem to be coming back. Most of my legs are numb, my eyes are driving me crazy, and I'm constantly exhausted.
On average MS patients have 1 attack every 3 years. I've had at least 6, and 5 have happened in the last 14 months. That's the equivalent of 18 years worth of MS attacks in a couple years.
In only 12 days, on September 6th, I am scheduled to check in to the hospital to get a breakthrough stem cell transplant that will fix all the health problems I have been dealing with (multiple sclerosis, lupus, etc.).
$30,190 has been raised so far between the HelpHOPELive campaign and PayPal donations!
HelpHOPELive, is a national nonprofit that is audited by the IRS. They have been helping people fundraise since 1983 and all of their financial statements are available online. They maintain the highest possible 4-star rating from the independent charity watchdog Charity Navigator. HelpHOPELive manages all of the funds raised and will only use them to help cover relevant transplant-related expenses.
The really amazing thing is how global the support has been! People from Australia, Austria, Brazil, Canada, Finland, France, Germany, India, Italy, Latvia, Macau, Malaysia, Mexico, Netherlands, New Zealand, Nigeria, Norway, Romania, Russia, South Africa, Spain, Sweden, Switzerland, Thailand, United Arab Emirates, United Kingdom, United States, and Vietnam have donated so far, and that does not include anonymous donations!
Even if you can't make a donation, just spreading the word by sharing the video below, with a personal note, is a huge help.