As many of you know I was recently in the hospital, so I wanted to update you on what happened. Tues 10/11-I woke up with chills and back pain around 230 am, took a bath and Tylenol and went back to bed. Woke up again at 530 am still with chills and back pain, Scott woke up and thought I had a fever. At this time my temperature did not register. Rechecked temperature at 630 am and it was 102.3. Called doctor at 8 am and they recommended going to ER. On arrival to ER temperature still 101 and heart rate 170 (normal 60-80). They did EKG to check my heart it was normal, chest x-ray that was normal and lots of blood work and started an IV. They also started 3 IV antibiotics as they waited for me to get results and a bed to be admitted. I was admitted to the Progressive Care Unit, similar to a step down ICU that evening. My fever continued and my heart rate averaged 130's.
Wed 10/12- Dialysis 7-11 am then when back to my unit my heart rate was 130-140. Pretty sick this day with fevers, increased heart rate, low blood pressures. The nurse was concerned so she contacted the doctor and they did another EKG (normal) and an ECHO. The ECHO showed Aortic Dissection which is usually a medical emergency. I wasn't really showing any symptoms so the doctor was ok doing further testing in am. Test results show infection in blood stream most likely from dialysis port.
Thurs 10/13 CT Scan to check for Aortic Dissection (normal). Infected dialysis port removed today. YAY I got to take my first shower in 6 months that what was 1 good thing about getting my port out!! (All I can do is take a bath and wash my hair in the sink)
Fri 10/14 Temporary dialysis port placed today in jugular (neck) vein (ouch!) Dialysis 1-5 pm Moved out of PCU today to regular unit!! YAY no more continuous monitoring!!
Sat 10/15 -Sun 10/16 Migraines and blood pressure out of control from stopping my meds when septic and now trying to get headaches and bp back under control.
Mon 10/17 Dialysis 7-11 am then to have new dialysis port placed from chest wall to heart.
Tues 10/18 Suppose to be released today but they didn't get IV antibiotics set up for discharge
Wed 10/19 Dialysis 7-11, Discharged at 130 pm YAY!!!
I will continue to have dialysis every Monday, Wednesday, and Friday every week. I will also be getting IV antibiotics on dialysis days until the middle of November.
We are constantly looking for individuals to be tested to see if you are a match. If you have O blood type, overall healthy and would be interested in finding out more contact the IU health donor coordinator at (317) 944-4370 or 1-800-382-4602. If you have called previously and have not heard anything call back, they will attempt contact for a couple of months then discard your info.
Much love and please continue to pray for us!! Chandra
Aug 24, 2016
Update 8/23/16 I wanted to update you on my living donor situation. Currently my cousin is being worked up as my donor. She has been through numerous tests and at this point is still a match. She will continue to go through more testing so please continue to keep both of us in your prayers!
As far as dialysis I have seen no change in the way I feel. I am still having a rough time on dialysis days. I have began working closely over the last couple weeks with the physicians assistant to try different things such as adjusting medications, dry weight, and dialysis machine extra rinsing. We are trying something different each week, if there is no improvement from the change the week before. I'm hopeful that we will finally figure something out!
As always thanks for all your support and prayers!!
Much Love, Chandra
Jun 02, 2016
Update 6/2/2016 I have been doing outpatient dialysis now for almost 3 weeks. To be honest each day of dialysis is a struggle. On the days of dialysis (Mon, Wed, Fri) I have migraines, nausea,...
May 06, 2016
This week I went to IU for my transplant education day. My transplant coordinator will be taking my case to the board on Tuesday of next week to have me put on the transplant...
Apr 22, 2016
4/22/16 Over the last couple weeks I have begun my pre transplant work up which included a dental screening, mammogram and pap smear. My mammogram showed some spots that needed biopsied. So I had...