Update 2/27/2017 I have been doing peritoneal (home) dialysis for a little over 3 weeks now. It has definitely been a challenge getting use to scheduling myself to do something every 4-5 hours. Its getting easier though! I am no longer having the horrible headaches that I was having with the hemodialysis (in center), thankfully!! I am taking things one day at a time!
I am still looking for my "life saver" so if you or anyone you know is interested please call IU Health at 1-800-382-4602 or (317)944-4370 to begin application process. If you truly want to help don't rule yourself out let the doctors do their job, they do a thorough work up to make sure you are the right match!
As you may have noticed we chose to go with a Help Hope Live fundraising campaign instead of GoFundMe. We did this because Help Hope Live has been around for over 30 years. It is solely used for transplant patients, patients with catastrophic injuries or catastrophic illnesses . Donations are tax deductible to the full extent of the law and are available for lifelong transplant-related expenses. With post-transplant medications which will cost us thousands of dollars each month we felt this was the best option. To help support us click the "Donate Now" button.
Please continue to share my story and pray for our family!
Much love, Chandra
Jan 20, 2017
Update 1/20/2017 Hi all!! Thanks for following my story! • I am still in need of a living kidney donor! If you have called previously and were unable to reach anyone, and/or they were not taking names, please call back, they are currently taking potential donor information. If you have already been sent info, either follow through or notify them and let them know you are not going to move forward in the process. This holds spots and prevents others from being worked up. Only 5 people are able to be processed at a time. If you are currently being worked up…THANK YOU!!! Any blood type can be a donor. If you are interested please call IU Health Transplant (317)944-4370 or 1-800-382-4602. • I am currently still doing “in center” dialysis 3 x week. I have begun training for home dialysis on my off days. The goal is to begin home dialysis on Feb 2nd. For home dialysis, I will be doing dialysis 7 days/week every 4-6 hours. This is definitely going to be a huge change and take up a significant amount of time. I am hoping that change will be a good thing, and alleviate all the bad reactions I have from in center dialysis. • I have been off work since May 2016, I am getting long term disability currently which expires as of May 2017 along with all of my other employee benefits that I have earned over 18 years. I really need to get a kidney ASAP so I can get back to work before I lose everything. =( • Please think about being a donor if you can! If not please pray and share! Thanks, Chandra XOXO
Dec 20, 2016
Update 12/20/2016 I had surgery on 12/13/16 to get a fistula in my arm. A fistula is a permanent dialysis site where they connect a vein and an artery. This is incase I need it later in life,...
Oct 21, 2016
As many of you know I was recently in the hospital, so I wanted to update you on what happened. Tues 10/11-I woke up with chills and back pain around 230 am, took a bath and...
Aug 24, 2016
Update 8/23/16 I wanted to update you on my living donor situation. Currently my cousin is being worked up as my donor. She has been through numerous tests and at this point is still a match. She...
Jun 02, 2016
Update 6/2/2016 I have been doing outpatient dialysis now for almost 3 weeks. To be honest each day of dialysis is a struggle. On the days of dialysis (Mon, Wed, Fri) I have migraines, nausea,...
May 06, 2016
This week I went to IU for my transplant education day. My transplant coordinator will be taking my case to the board on Tuesday of next week to have me put on the transplant...
Apr 22, 2016
4/22/16 Over the last couple weeks I have begun my pre transplant work up which included a dental screening, mammogram and pap smear. My mammogram showed some spots that needed biopsied. So I had...