Update 1/20/2017 Hi all!! Thanks for following my story! • I am still in need of a living kidney donor! If you have called previously and were unable to reach anyone, and/or they were not taking names, please call back, they are currently taking potential donor information. If you have already been sent info, either follow through or notify them and let them know you are not going to move forward in the process. This holds spots and prevents others from being worked up. Only 5 people are able to be processed at a time. If you are currently being worked up…THANK YOU!!! Any blood type can be a donor. If you are interested please call IU Health Transplant (317)944-4370 or 1-800-382-4602. • I am currently still doing “in center” dialysis 3 x week. I have begun training for home dialysis on my off days. The goal is to begin home dialysis on Feb 2nd. For home dialysis, I will be doing dialysis 7 days/week every 4-6 hours. This is definitely going to be a huge change and take up a significant amount of time. I am hoping that change will be a good thing, and alleviate all the bad reactions I have from in center dialysis. • I have been off work since May 2016, I am getting long term disability currently which expires as of May 2017 along with all of my other employee benefits that I have earned over 18 years. I really need to get a kidney ASAP so I can get back to work before I lose everything. =( • Please think about being a donor if you can! If not please pray and share! Thanks, Chandra XOXO
Dec 20, 2016
Update 12/20/2016 I had surgery on 12/13/16 to get a fistula in my arm. A fistula is a permanent dialysis site where they connect a vein and an artery. This is incase I need it later in life, post transplant or if my current or soon to be dialysis method fails I will have a back up. On the 13th I also had a peritoneal dialysis site placed in my abdomen. This site will allow me to begin dialysis at home. I will begin training next week for the next several weeks to learn how to do home dialysis. During this training I will continue with my current in center regimen. Our hopes are to begin in home therapy by February. As always the best case scenario is a live kidney donor, so please continue to pray for our family and share our story! Thanks xoxo, Chandra
Oct 21, 2016
As many of you know I was recently in the hospital, so I wanted to update you on what happened. Tues 10/11-I woke up with chills and back pain around 230 am, took a bath and...
Aug 24, 2016
Update 8/23/16 I wanted to update you on my living donor situation. Currently my cousin is being worked up as my donor. She has been through numerous tests and at this point is still a match. She...
Jun 02, 2016
Update 6/2/2016 I have been doing outpatient dialysis now for almost 3 weeks. To be honest each day of dialysis is a struggle. On the days of dialysis (Mon, Wed, Fri) I have migraines, nausea,...
May 06, 2016
This week I went to IU for my transplant education day. My transplant coordinator will be taking my case to the board on Tuesday of next week to have me put on the transplant...
Apr 22, 2016
4/22/16 Over the last couple weeks I have begun my pre transplant work up which included a dental screening, mammogram and pap smear. My mammogram showed some spots that needed biopsied. So I had...