Things aren't going very well. Monty has been in the hospital for some time. First in a facility that we are still not sure why he was there in the first place and his health declined where he was transferred back to Tufts Medical Center for immediate medical care. When he arrived he was very sick. Since back at Tufts, His health declined where a blood clot was found in his LVAD pump. For those in the CHF world, this is dire and scary. Typical procedure is to endure surgery to change out the pump. Monty was in a very fragile state with kidney failure, liver failure, and heart failure, so this surgery was not possible. The docs deliberated and all decided to turn off his LVAD! Oh Gosh! This was devasting to hear. When this happens it is a matter of time. Monty had gotten sick over the next couple of days and was very sick where his body was going into shock and we almost lost him. (This update is not an easy one to share friends.) Docs rushed into surgery, ECMO surgery and this was only a 50/50 chance. Monty was losing our fight. (Oh gosh this is so hard to relive!) I was losing my husband. My partner of 30 years! The love of my life. The air that I breathe, The father of our children. I just went through losing my mother 9 months ago while holding her hand and here I was faced with losing my other best friend. I was side by side my mom the whole time and even when what I could do was nothing more I was there until her last breath and here I was repeating the same helpless motions with my husband. I refused to believe that God wanted back two of my most precious people in my life so close together and so devastatingly. After the hour ecmo surgery, Monty made it. He beat the odds. While recovering Monty was stable but the next major surgery needed to happen to sustain his life. The ecmo was an immediate but temporary answer. This ecmo machine would do the functions of his heart and lungs. Two days later he was brought into surgery again to have a BI-VAD placed. The Bi-VAD if he made it through the surgery would sustain his life living in the hospital until transplant. The BI-VAD would take over the function of his heart. The surgery was a 7/8 hour planned surgery which turned into a 13 hour surgery. The surgeons were very cautious and diligent that they saw Monty through another successful, major, risky, surgery. Monty once again pushed through and survived! The next day Monty needed to go back into surgery that lasted 3 hours to remove some tubes and to close his chest which couldnt be done previously due to potential bleeding risks. Monty now recovers slowly but surely in the CTU. He is very critical. He raises his eye brows to communicate and can slighly nod his head.These are joyous moments and beautiful accomplishments! Monty will require alot of time to recover but I Know he will recover. I had an experience with God where he told me that, "Monty will be fine." He will be brought to the depths of this condition, but he will be fine." "Stay in your faith" God told me. From that moment on I had no fear and i walked stronger, walked taller in my position as caregiver, supporter, and wife. God is good and when he speaks we need to be still and listen.
Thank you friends for caring and supporting us through this journey. Your support means everything. Smoother bumps in the road, more manageable feats, and healing. We love you all.
Nov 02, 2016
People are resilient and people are strong. you never just how much until you have traveled the journey of a chronically ill person. Monty is once again in the hospital. Once there he was transferred into a rehab. unsure of why but never the less we are trying to remain compliant. His spirits are still high and is working on keeping fit and physical for transplant.. until the next update friends. By the way did you check out the blogs of Helphopelive? They are awesome and one was also written on Monty. Check it out! Continued gratitude for all the support on this journey. Be Blessed and be a blessing to others.
Oct 23, 2016
After 48 days in Tufts, Monty is home.
He is happy to be and his mind & spirits really needed this even though his health needs tufts. We are taking things one day at a time. Watching everything...
Oct 15, 2016
October 15th and Monty is still in Tufts! It seems like every baby step forward brings 10 giant steps back. However we are still in the fight. The current setbacks are water retention, Low then...
Oct 05, 2016
Hello friends and supporters.
Monty is prayerfully on the mend. Docs are diureacing him taking alot of fluid out of him (8 liters ) now he can breath more freely. He is walking the halls...
Sep 26, 2016
Monty is back in the CCU at Tufts Medical Center. Needing to bring down his creatin levels and more oxygen into his body. Fluid needs to come off so we can get better test results in...
Sep 24, 2016
9/11/2016.... In the ER in Newport... Looks like we will heading to tufts. 7:00 pm transported to tufts.
9/12/2016..... Well Monty has double pneumonia and is in the...
Sep 13, 2016
Monty some how has gotten pneumonia. That means he is back at tufts in Boston. Its been 3 days. He showed signs of getting better then a setback occurred. His spirits are still very...
Sep 07, 2016
Its been a while since we have been able to update here on Helphopelive. Monty has spent most of the summer in the hospital. There was a four week stay due to an infection...
Jul 01, 2016
They say, The waiting is the hardest part. Well today is day 21 in the hospital and we are waiting. Waiting for Monty's levels get right, waiting for test results to come back, waiting for the...
Jun 21, 2016
Hello family, friends, and supporters!!!
Hope your days are bright and full of life. Life is good even though Monty has been in the hospital for the past 10 days and what a whirlwind it has...
Jun 19, 2016
Happy Father's day!
Jun 11, 2016
Good news and not so good news.
Monty had a clinic visit on Tuesday. Dr. D told him things look good for a transplant to be ready. That this year so far they have done 22 transplants. Dr. L says...
Jun 03, 2016
*** LEND A HAND FOR A HEART ! ***
Last night's fundraiser was AWESOME ! Thank you St. Michael's Country Day School and to the Ladies who spearheaded the evening. Bethany, Marjorie,...
May 30, 2016
Watch this cute little video I found on youtube! Its all about Helphopelive and what they do. Little do they know, They do a WHOLE LOT more than the video shows. They are a great group of people,...
May 30, 2016
Spending the holiday in the ER. Experiencing shortness of breath, sweating, chest pressure and chest pains not felt before traveling down his left arm. Following protocol, call to Tufts, xrays,...
May 29, 2016
Here are some words from Dr. David DeNofrio. Head of the transplant center at Tufts Medical Center in Boston. Enjoy.
May 29, 2016
Here is a great source of information. If you are a heart patient or care giver to a heart patient and are looking for information on resources available, or knowledge from survivors, or just plain...
May 27, 2016
DID YOU KNOW ?
A heart can remain viable outside of a human body for up to 4 hours?
Click on the link, See how doctors are learning how to sustain the heart outside the body longer. This...
May 27, 2016
Parents of St. Michael's Country Day School, Newport RI, are hosting a fabulous fundraiser for Monty !
Click on the link for more info. Hope to see you there!
May 19, 2016
Hello Friends! We want to thank everyone for the monumental outpouring of support, well wishes, contributions, and more. Its amazing to feel so much love. We Thank you from the bottoms of our...
May 14, 2016
Monty's clinic visit went ok. His retention of water in his mid section was concerning hence another change in his meds. Bump up the potassium and torosimide! That makes 23 pills in the morning,...
May 10, 2016
While Monty waits for a transplant he is considered in medical terms, " a bridge to transplant." This means he currently is an lvad patient. Lvad is short for left ventricular assist device. This...