Marisol has been doing great! She had an awsome weekend at Ocean City with her cousins. Her kidneys have been acting up a little so her transplant team wanted her to be seen by their Nephrologist to see if they recommend anything. She will also be seen by her transplant team. Marisol's appointment is at 8:00 on Thursday and with a 5 hour drive to Pittsburgh we came Wednesday afternoon. Thanks to a wonderful organization called AngelFlight and an awsome pilot @Anthony Loguidice we made it to Pittsburgh in under 2 hours.
Marisol and I went out to dinner and are now enjoying Paint Night at the Ronald McDonald house. God willing we will be heading home after clinic. Please keep her in your prayers and I will update tomorrow. God bless.
Jul 07, 2017
Today marks 1 year and 8 months of Marisol being listed. We are really learning patience.
Marisol has been doing great thank God, she did have a tough decision to face. Kuzko had been having a lot of anxiety and crying a lot we had to stop practicing public access. We took him to a local trainer and we made a decision to re home Kuzko and start service dog training all over . Kuzko's anxiety couldn't be controlled which made it difficult to take him to the hospital with his anxiety high and adding Marisol's anxiety would make it worst and he could react in a negative manner if a doctor or nurse were to come into her room and cause her to have more anxiety.
We did not find it fair to put Kuzko in that position. It was the toughest decision for her and us but we knew the purpose of Kuzko was to assist her medically when she's most vulnerable in the hospital. After a lot of talking and crying and praying. We completely agreed and supported her decision. We find comfort knowing who Kuzko is with and can maintain in contact with them. Kuzko has a new playing partner and is loving his new home. It is very difficult starting training all over with a different dog and always thinking of Kuzko.
We would like to present Marisol's service dog in training. Fozzie, he is a 10 week old Goldendoodle. Marisol has had Fozzie for a week now and he's a lot of work. Fozzie comes with a strict schedule and Marisol has been doing great on sticking with it. We had quite a few nights of Fozzie crying all night but Marisol is getting to know him and what he wants and he's been doing great the past few nights. This is a bittersweet experience for Marisol but we all know how strong she is and know she will get through this. Kuz can never be replaced and will always have a huge part in our hearts.
We would like to thank American K9 for donating Fozzie to Marisol. Service dog training is very expensive and is not covered by insurance. We know God put this opportunity in our lives and we leave it all in his hands. Have a great weekend. God bless. #miraclemarisol
Jun 17, 2017
I know we haven't posted for a while but no news is good news. The Ramirez family has been enjoying the outdoors and beautiful weather! We all had cabin fever from the winter. 1 year and 7 months...
May 13, 2017
Home sweet home! Nothing like being together again. We'll be catching up on some much needed peace and quiet and family time. Have a blessed day!
May 11, 2017
Day 2 went well today. Marisol had transplant clinic and a few tests today. We'll have more information once they get the results. Marisol is feeling great but missing Kuzko terribly, she can't...
May 10, 2017
We arrived safely last night and Mari and Jaycee spent the night chattering away. Today Marisol has 2 appointments and in between will be catching up with Jaycee. We are so grateful these girls...
Apr 11, 2017
Month 17.... Marisol has been doing great since she's been home. We are almost at a year and a half of waiting. Very weird how our mentality changes as we wait for the call. When Marisol was first...
Mar 03, 2017
Marisol has been doing great! All the Glory to God. We are at month 16 of waiting for "the call" and though she has not so good days she has been hospital free 10 months!! This is something we...
Feb 05, 2017
Mari got some one on one service training today at the mall and Kuzko did great! He is off to training with Nicole for the week. Marisol is doing so much better with letting him go for the week...
Jan 29, 2017
Ever wonder what 1, 806 pounds looks like? It fills a uhaul truck to the top! Thank you so much to everyone who contributed, helped spread the word, our Lifehouse Church family for storing it all...
Jan 04, 2017
Happy New Year's! We had a quiet one at home the 4 of us and it was great! 2016 started out pretty rough but the good definitely out weighed the bad. Marisol got to attend her first UMD...
Nov 27, 2016
We hope everyone had a wonderful Thanksgiving. We are so thankful to God for being able to spend it with our family. Marisol had a great time and ate a lot!!! We have learned not to take these...
Nov 13, 2016
Hello family and friends tomorrow is the last day to order #miraclemarisol fundraising t-shirts to have them for Thanksgiving. Please see flyer to place your order. Thanks for your support!
Nov 07, 2016
Saturday officially marked one year of Marisol being on the transplant wait list. She is at the top of the list but so many different things need to match in order to find a perfect donor for...
Nov 02, 2016
Thank you so much to all our friends, CPA classmates, and family members that came out to support our hero! It was so nice seeing everyone. We really appreciate all your support. If you couldn't...
Oct 24, 2016
Marisol has had a super busy week! Last Sunday she sat in the dugout with the UMD softball team and had a great time. Wednesday she was given tickets to see SIA and Thursday her first outing to a...
Oct 02, 2016
Marisol has had a pretty rough week. We were worried we would have to end up in Pittsburgh but thank God she's feeling better. She started itching and with stomach pain last weekend. She didn't...
Sep 18, 2016
9/17/09 we were sitting in the waiting room while our hero endured a 16 hour multi organ transplant. We spent 2 months in the hospital. 9/17/16 we spent Marisol's 7th transplantversary with her...
Sep 15, 2016
9/15/09 A special family was sitting in the hospital and had just lost their beautiful daughter Kyla. 7 years later I would have never imagined I would be spending that special anniversary meeting...
Sep 15, 2016
A bittersweet day for our hero. Kuzko is off to service dog training for the next 2 weeks. Marisol is super sad that Kuzko won't be with her but she understands that this is the ultimate goal for...
Sep 07, 2016
Officially month 10 of waiting.
Aug 28, 2016
First week of school completed. Marisol was so happy to be back in school. She started 1/2 days and was completely exhausted by Friday. Saturday she went on a tour with her softball team from...
Aug 23, 2016
First day of school! Marisol wasn't able to finish school last year since she spent most of the year in the hospital. She is so excited to be going back to school ( a little nervous also) and...
Aug 21, 2016
She's home! Marisol came home from camp yesterday and had a great time! They even had a celebration for her for staying there the whole week. Camp is the highlight of her summer each year and...
Aug 19, 2016
One more day and my princess comes home! We have been calling and checking on her and she has been doing great!!! Thank God she has been able to make it through the whole week!!!
Jr and I had a...
Aug 04, 2016
Marisol has had a good week. She enjoyed her time off from Jr. but was ready for him to come home. We surprised Jr and re- did his room while he was at camp. Marisol had fun helping to paint. Thank...
Aug 03, 2016
Thank you so much for checking out Marisol's page. We'll be planning events and posting them on here. Please like her page on Facebook @miraclemarisol
Jul 28, 2016
Marisol was spotlighted on NBC as she was collecting and donating bags of cheer for kids and parents that were in the hospital over the holidays. Here is the video of #MiracleMarisol...
Jul 28, 2016
Marisol has been doing great. Her labs from last week and this week are stable. Jr left to "Brass Camp" Sunday which is run by the same organization called Special Love that Marisol attends every...