Sierra has been sick the last two weeks with ear infections and a UTI. On top of that, she had an allergic reaction to one of the antibiotics she was on. Today, however, she seems to be feeling much better and has returned back to school. I also wanted to update everyone that we are still planning on using some of the funds for a handicapped van, but we are also hoping to take her to California sometime within the next year to the NAPA therapy center where she would do a 3 week intensive therapy session. This place is highly recommended by many families with kids that have CDG and really makes a big difference in these kids' lives. We will keep you updated. Thank you for your love and support.
Sep 05, 2016
Sierra is fighting a bug right now, but she still being her usual happy self. Her seizures have been slightly worse. We believe that her body is still getting use to the new device or it will need adjusted.
Aug 22, 2016
Sierra will be going to surgery tomorrow morning at Nationwide Children's Hospital to have her VNS battery replaced. Prayers are appreciated.
Aug 11, 2016
Today has been an emotional day for me. Right now I am worried about my sweet Angel. She has to wait for surgery till August 23rd to change the battery in her VNS. Earlier today she had a seizure...
Aug 11, 2016
Sierra slept more than two hours in a row! We got up at 4 am. She slept for 7 hours in a row!!! Hopefully this trend will continue. Now that I am up, I am going to make my to-do list for today....
Aug 09, 2016
Sierra is sick today and her autoimmune thing flared up as a result. Unfortunately,today was the day she was suppose to have surgery to have her VNS battery replaced. When this flares up her eyes...
Jul 22, 2016
Sierra is a little more irritable than usual and is having more drop seizures. She is waiting to have surgery to replace her VNS battery. We believe this is why we are seeing more seizure activity....