This was a speech given by me to a pharmacy group about IPF. I am on the stage with the moderator. This was the 2016 Annual American Thoracic Society conference in San Francisco.
Sep 20, 2016
A letter from Dan ~ Sept. 19th
It has been two months since I have had my double lung transplant. I am home and I am reveling in the joy of friends, family, autumn in Napa Valley in the height of crush, smells, music, food, family and friends! My recovery is going really, really well.
While I was recovering in ICU, Susan and a dear friend of ours, Frances, went to work setting up the HelpHOPELive donation site. They sent out the website to you and that is when something very special began. After living with this disease for four years in a closed world, we started to receive your donations. However, what was much more powerful is we started to receive your words of encouragement and love. We received sentiments from friends of Katrina in Colombia whom I have never met, wonderful words of encouragement from our amazing large family of cousins, aunts, and uncles, words from my fabulous group of friends, from the girls of Seneca Lake, words from our close knit Napa family, to our lovely young family friend with the beautiful voice who is going to sing me an Alicia Keyes song.
I want to thank Ann, Paul, Joe, Rowan and Susan, my dear caregivers and John, Marilyn, Frances and Paul who watched Casa Castanier while we were away and supported Susan. Then there are the cards and emails that started coming in. I was overwhelmed and humbled. The doctors gave me medicine to help my body recover, but what you gave me was even you powerful, because you gave me your love which went to my very soul and made my recovery even stronger. With each person I was able to pause and recall a moment that we shared a laugh, a hug and in some cases, a tear. But here is where the miracle happens. I will now be able to have many more moments with you to share a laugh, a hug and perhaps a tear. I want to see you all again, hopefully in Napa where we have a room waiting for you, some good food and some great wine. I have been told that I am a pretty good valley tour guide.
Jim Valvano, the late basketball coach for the NC State basketball team spoke at the ESPY awards a few months before he died of brain cancer. The audiences knew he had terminal cancer and Jim knew he only had a few months to live. He said “To me, there are three things we all should do every day. Number one is laugh. You should laugh every day. Number two is think. You should spend some time in thought. And number three is, you should have your emotions moved to tears, could be happiness or joy. But think about it. If you laugh, you think, and you cry, that’s a full day. That’s a heck of a day. You do that seven days a week, you’re going to have something special”.
With deep appreciation and much love, Dan
Aug 19, 2016
It has been four weeks since Dan’s transplant. He was a thoroughbred race horse upon hospital release three weeks ago, strong and settled into good routines. Dan has had a bit of rough weather...
Aug 14, 2016
We are so grateful for the support that has been coming in from all over the world. Your donations are truly appreciated. Your messages are uplifting and healing - keep them coming! We thank you!