I'm SO PLEASED to be sharing the news that ILYSA RECEIVED A KIDNEY TRANSPLANT earlier this week, and after a short hospital stay we came home last night.
There really are no words to describe the donor - beautiful in spirit, kind, generous, empathetic - none of these capture the gift she has given to my family.
Similarly, there are no words to describe our gratitude to her and her family. This woman, a stranger to us, and her family and friends, came to us through Renewal after learning of Ilysa's story and our struggles, and her act of kindness has changed the course of Ilysa's life forever.
Ilysa will no longer be tied to dialysis, she will have more energy, her blood pressure will improve, she can eat and drink, she'll be able to travel... The health benefits are countless. But more than any of that, she'll be able to be there more for our children.
Thank you Catriona Ni Aolain. My sincerest hope is that Ilysa uses your gift to show the world just how much adversity a person can overcome, and that she touches lives in the process.
Looking forward and feeling grateful...
Apr 08, 2017
...a day in the life... of dialysis...
I don’t mean to whine, but daily dialysis can get any girl down. As if what happened wasn’t enough, I have to deal with kidney failure too?! It’s all a...
Mar 06, 2017
UPDATE FROM ILYSA:
I'm writing to update you all on what's happening with my kidney transplant...
The process is confusing and difficult. Information is not readily given out and HIPPA...
Dec 02, 2016
12/2/2016 - Ilysa Kidney Appeal
Thank you so much for your support thus far as Ilysa endeavors to get back to some sense of a "normal" life. As most of you know, she is continuing to make...
Nov 05, 2016
11/4/2016 Last night's Soul Cycle event was a huge success. We are so grateful to everyone who came out to support our cause and of course to Soul Cycle and Svedka for partnering with us. We are...
Oct 24, 2016
This past Saturday, Ilysa attended one of her closest friends weddings. This moment was so special for Ilysa and the beautiful bride Natalie. Being present at this wedding was a major goal and...
Oct 19, 2016
10/19-Just 5 DAYS after receiving her lower prosthesis, this Superwoman is walking!!!!! She is making outstanding progress. We are so excited to share this update with all of you. Keep checking...
Oct 13, 2016
10/13 We're thrilled to share Ilysa's first assisted steps with her new prosthesis. She's doing an unbelievable job in rehab everyday.
Oct 01, 2016
We're so excited to present Ilysa receiving her first prosthetic hand! This is her first time using the Bebionic hand. Based on her performance, we have no doubt she will excel in no time!
Sep 22, 2016
9/22 -- We are nearly ready to receive our first prosthesis! Check out the video below. This was Ilysa's first time using the hand and she did incredibly well. As the rest of her limbs heal,...