Good afternoon! Headed to Boston Children's for the day. Urology and Cardiology. ...and a stop to ICU to visit!
Conor has been getting back into the groove with school. He has an excellent aide, Colleen and an equally incredible tutor/assistive tech, Nick! WSHS couldn't be any more supportive! Two hours a day and tutoring is what he can handle now and is going well.
I mentioned exciting news from Philly, but, didn't want to "announce " until we had an official date. ~ SO, January 6th, Conor WILL BE getting nerve transfer surgery! He was an excellent candidate and was graciously accepted!
It will take about a year to see the full effects, as nerves grow about a millimeter a day. He will regain tricep function, open and close of hand, and a STRONG possibility and promising outlook for finger movement!
This doesn't stop him from returning to GA for intensive day therapy, it just pushes us back about a month. It also doesn't exclude tendon transfer either. That will come in the summer. God willing, by his 18th birthday, (January 2018) he'll be just about full functioning upper extremity and in a manual chair!
The excavation is beginning TOMORROW on the house. Having him in our own home and us all together for Christmas is my biggest prayer!
As always, thank you for your continued support, prayers and monetary donations! We are in need and are eternally grateful!!!
Love, the Mama
Nov 08, 2016
The BEST inpatient in GA (The Shepherd Center) sent us to the BEST outpatient (Shriners Philadelphia)! Day 2, going great! Lots of exciting news coming!
Oct 25, 2016
He's baaaaaaack!!!! Please let's all welcome home Conor and his family!!!
And here's the story as covered by local news:...
Oct 14, 2016
Thurs. Oct. 13, 2016 ~~ So, yesterday Conor had his catheter surgery. It went well. However, during pre-op, a heart murmur was found. Later in the afternoon it was confirmed. Through the night he...
Oct 13, 2016
Wednesday, October 12, 2016 Prayers for Conor ya'll. He's going in for surgery on about an hour. It's a routine, common procedure for a specific catheter; but, anesthesia is always a risk... extra...
Sep 09, 2016
Hi ya'll... Conor's mom reporting: September is Spinal Cord Injury Awareness month, to that end, I'd like to be real for a minute~ There is not a word to describe the range of emotion that Conor...
Sep 06, 2016
September 3, 2016 Conor Says: "Hustle, Hit, Never Quit!"
UPDATE: ✔️ TRACH OUT!!!
✔️ Neck Brace Off ✔️ GI Peg out ✔️ Off The Ventilator ✔️ Off Feeding Tube