Last month, my main UCSF Pulmonologist reminded to me to keep living my life as best as I can, while forgetting that I’m on the waiting list. I looked at him, somewhat incredulously, and thought “you try it dude, if only for a month, and see how easy it is to forget that you could expire any day while waiting for the possibility of two new lungs that match your blood type, your weird antigens, fit into your chest cavity....oh, and be next on the list.!” However, Dr. Hays had something. (Makes me realize he’s been around quite a few of us, holed up in our house, afraid to go out in case of exposure to some life threatening influenza, or a cigarette smoker next to you, or a burn day in Three Rivers that sets you off before others even smell the smoke). So I’m living it up; for me that is. New Year’s Eve at Three Rivers Brewery with fire dancing and lots of celebration; lunch with my dear FBC friends at the Riverview after church; a movie (I’ve been to one in the last year) with Sierra Swinney; hanging on the rooftop of Meaghan Skye and Jean Paul Cortes new cozy abode watching the changing sky over Moro at dusk; enjoying an impromptu date night with my beloved at the Buckeroo, winding up in the hospital twice; returning home to begin decluttering again; dining out AGAIN at the Ol Buckeroo for a birthday celebration; enjoying a sunny day with Steven eating wild blackberry ice cream at Reimer’s; and visiting the Jerky Stand across from the candy store for the FIRST time!! (Did you know they’ve been here 15 years???). I’ve had an amazing month, in spite of almost biting the dust twice in the ambulance just two weeks ago. I hope to make it to Sunday School tomorrow (I’ve never made it to church before 10:50 am and 9:30 am sounds a bit lofty!) I’m also attempting to play a bamboo flute which Julianna has loaned me, and I’ve asked Sierra to teach me the ukulele. My life has been more full these last 28 days, then it’s been for years.....and there’s still a couple of days left. Brother Jeff arrives next week and I have plans.....of course, I must remember to take It sloooooowly, rest, conserve energy, etc., etc. Hard to do when your forgetting you’re on the double lung transplant wait list. My take from all this? Once again, I urge each of you to forget about your “list” and live your life grand. This may be an intimate dinner with friends, or a hot date with your sweetie, or a weekend to Cambria, or sitting on your patio watching the sun set with a glass of wine, listening to the Kaweah River. Hopefully next month, no ambulance rides or 10 day stays at the Casa. Blessings my friends....Deep breath in......Love....... #gratitudeinallthings #drhayssageadvice #justbreathe
Jan 02, 2018
2018- WOW! Waiting for my two new lungs since November 2016 and life is good. With the support of my amazing family all over the United States, I’m motivated to keep fighting on until the ‘Call’ comes. Hopeful that God’s perfect timing is this year....as Dr. Hays instructed me last month, ‘keep living your life, forgetting you’re on then transplant list.’ Ok Doc., easier said then done but we’ve got this!!
Nov 18, 2017
Still waiting for those perfect, pink lungs that will allow me to take my first full breath since birth. One year ago today, November 18th, 2016, changed my life in unimaginable ways. Fear of death...
Oct 23, 2017
Just because I'm on the bilateral lung transplant list at UCSF doesn't mean I can't have fun and go to a World Series game to cheer on my boys in blue, the LA Dodgers. Live life the best you can no...
Oct 11, 2017
I finally made it to a Dodger game this season. Not just any game mind you. The first postseason game with the Diamondbacks. A gift from another huge baseball fan. Just WOW! At my insistence, my...
Aug 16, 2017
It's been nine months since I was first listed at UCSF for a double lung transplant. Initially, I was preparing myself by packing a suitcase in anticipation of 'the call'; finally getting a Trust...
Jul 21, 2017
With smoke lingering in the air from several fires in central CA, Steve taking a tour up to the Sequoias, I find myself braving it all and driving solo to Pulmonary Rehab in Visalia, 35 miles from...