It's packing day. I'm nervous, scared, sad yet hopeful. We'll leave for NYC tomorrow as a family, spend the weekend with our dear friends, the Cummings, then Dean and the girls will head home on Sunday. I'll stay in NY and start out patient radiation on January 3 then I'll be admitted for conditioning chemo on January 11. My sister will be collecting stem cells on January 17 and my transplant is scheduled for January 18! Thank you friends for your love, prayers and support!
Dec 19, 2016
Yesterday I was on a two hour conference call with Be The Match and my sister. As my potential donor, my sister was given detailed information about her role in my transplant. This call made me realize this is very real! I'm not in denial but I will say there have been days when I've questioned if this is really my life. I'm afraid to look at the calendar because I see the days counting down yet I know each day closer to transplant is one day closer to coming home.
On December 28, we will leave Virginia as a family and head to NYC. I have an appointment with a radiation oncologist the morning of December 29. We will meet up with the Cummings for the New Year holiday weekend. Dean and the girls will stay until January 1 and then head home. I start out patient radiation twice per day January 3 through 6 and again January 9 and 10. January 10 is my birthday! I will be admitted to MSK on January 11 and will start a six day regimen of high dose chemo and total body irradiation. Throughout the week prior to January 17, the day my sisters' stem cells will be collected, she will be going through the process of ensuring she has an adequate supply. At the moment, the plan is for me to receive her stem cells on January 18. Please pray that all goes smoothly. I will be in patient for 4-6 weeks at MSK. During this time, I can have visitors so long as they are well and haven't recently been ill. Once I'm discharged from the hospital I will stay at Hope Lodge with my care giver, my best friend Dawn, for at least 100 days which puts me home sometime in May.
Truthfully, I have never been so scared in my life. All I can do is take one day at a time and not think too far into the future. The journey ahead is daunting yet I know I must do this for my family.
Thank you for your support, prayers, good thoughts, positive vibes and love you all have shown our family.
Dec 11, 2016
I need to add...I have some amazing friends who are willing to stay with me in the hospital when Dean can't be there. Sarah, Martine, Jean, Jessica Sonia I know we still need details yet I thank...
Dec 11, 2016
What a crazy journey the past 18 months have been! Honestly, it's been almost nine years filled with many bumps in my road since I was diagnosed when Sarah was born. I wish I could say that I'm...
Dec 07, 2016
Without a doubt the most difficult decision I've every had to make. It appears an allo SCT at MSK is back on the table. I'm traveling to NYC today for SCT work up and to meet with Dr Shah. I'm...
Dec 02, 2016
This past week has been very difficult as I was forced to make a treatment decision with conflicting information. I traveled to MD Anderson this week and met with Dr Nieto. His recommendation, not...