5/22/2017 Update: Last week was full of 3 month bronchoscopy(to check for rejection and infection) and EGD( both with biopsies and cultures),CT scan and usual weekly/biweekly assorted bloodwork,chest xray and pulmonary function tests.This week I will get results of all and whether I need an additional procedure....and hopefully an idea when I might be heading home.Starting to really miss the kids,grandkids,friends and family.Hoping and praying for some positive outcomes.
Physical therapy let me off last week since I had back to back anesthesia/recoup but back to 3X this week.
All prayers and positive thoughts greatly appreciated.
Apr 24, 2017
Last week marked the 2 month mark post transplant for Sue! Yea! Sue is focused on compliance with medications and physical therapy goals, but most of all enjoying life again! Sue and her current caregiver, Stacy, have found some beautiful trails in the Chapel Hill area and have enjoyed many longs walks, even though they have had to dodge the rain and mud as best they can! Sue misses her family - especially Eric, Sam, Jasmine, Hailey, Chelsea, Tristan and Ben - as well as all of the rest of her family in Florida, New Jersey, California, etc. A big thanks to friends and family in Florida who made it possible for her to attend Eric and Sam's beautiful wedding a few weeks ago via Facetime, and through the many pictures and videos that have been shared with her. Donations made to Sue's HelpHopeLive fund are supporting her ongoing housing expenses in Chapel Hill and are literally making it possible for her to stay in the area to receive the required post transplant care needed for continued success. Sue expects to be in the Chapel Hill area until approximately September. Stay Strong Sue!
Apr 08, 2017
A touching video journal of Sue's journey to breathing freely again. The courage Sue demonstrated throughout the journey and the bravery with which she faced each and every of the many challenges...
Apr 07, 2017
Tomorrow marks 7 weeks post transplant for Sue! Again gratitude to God, the donor and family, supporters, the transplant team, caregivers, etc. She is making great strides, taking each challenge...
Mar 22, 2017
Sue is taking each day as it comes, not without multiple struggles, especially constant nausea. She is staying strong and being creative with trying to find what works to sustain the many required...
Mar 16, 2017
Sue was discharged from UNC the evening of Tuesday March 14th after a 5 day stay for nausea, pain and dehydration. They adjusted medications to provide some relief for the nausea and pain. Sue is...
Mar 12, 2017
Sue had a few wonderful days out of the hospital and in her new temporary residence in Chapel Hill. She was getting comfortable and had help putting the things together that she will need while in...
Mar 08, 2017
Sue was discharged from UNC Chapel Hill on Monday! Look at the smile her first night in her Chapel Hill home! She is on almost a daily schedule of clinic visits, PT, and other outpatient care as...
Mar 03, 2017
Here is a message directly from the warrior patient herself... From Sue:
"I wake up every morning thankful to my donor and grateful to be alive. It is day 12 post op from my double lung...
Mar 02, 2017
Sue received some great news yesterday - discharge is being planned for Monday, March 6th! While her care team preps for her discharge, plans post discharge medication/schedules, etc., Sue is...
Feb 28, 2017
Birthday Challenge met and exceeded! Thanks to all who contributed. Sue is feeling better by the day and is looking forward to a discharge date. It's been a long time in the hospital...
Feb 26, 2017
By popular request, I am providing an update to Sue's journey and a Birthday Challenge!