Dear Friends, Families and Incredibly Kind Strangers,
Gratitude is today's word--in fact it is and has been the word I am carrying with me since I received my double transplant. I apologize for the lengthy break in giving updates. I have been working so hard in Rehab at the COLLT that I am wiped out and have needed to just take a nap.
I am actually doing pretty well at the COLLT,,, I am now able to walk for 30 minutes with a therapist holding me gently. I can also ride a recumbent bike for 30 minutes...my 30 minutes with the physical therapist is a bit dicey. My muscles are weak, especially my core and the muscles connected to my joints. i am able to do the things the therapists ask me to do but I get really exhausted and out of breath. Happily I recover quickly without needing any oxygen at all, I am getting stronger every day and the therapists doctors are very pleased with my progress.
There are a few complications which are keeping me here. 1) my balance is not good so i am still considered a high fall risk. 2) my gastric reflux is getting worse so the doctors are concerned I might get acid in my lungs (which would immediately cause rejection of my lungs.) 3) I am having trouble with
Jun 02, 2017
At long last I am able to type an update.
Physically I am doing amazingly well considering what my body has gone through since my transplant surgery on the day after Easter.
Emotionally I am having a hard time wrapping my head around the fact that I have two new/healthy lungs. I can breathe and I do not need to use oxygen! While I am still very weak and am experiencing a fair amount of pain, I know that with time and rehab/exercise it won't be long til I am living a normal life.
Spiritually I am doing a decent job of staying centered and connected most of the time, and when I slip I do a good job of catching myself and making different choices. I also am surrounded by a cloud of witnesses who are holding me up (literally sometimes), cheering me on, praying for me, feeding us and holding Divine Energy Love Light around and within me. How can I possibly choose fear when I am surrounded by such an amazing community of you, church, friends and family. Without your support and prayers I would not be doing so well. Thank you all sooooo much!!!
May 30, 2017
Let us rejoice - Karen was released from the hospital today! She is walking further distances and feeling much better than some of these tough past weeks.
She will be surrounded by the support...
May 16, 2017
Thank you all for on-going thoughts and prayers. You encouragement is still right on time. Week 1 Post op went very well and although everything since is within the realm of 'normal' by the...
Apr 18, 2017
Surgery was a success! Karen was in surgery 4:30 p.m. until about 2:00 a.m.
Everything has gone as expected with the double lung transplant and Karen's medical team says she is right on track!...
Apr 17, 2017
INCREDIBLE NEWS for Easter Monday. Send Spirit, breath, and hopes for Karen who is in surgery, receiving her double lung transplant!!!! Surgery started at about 2:00 p.m. EST and is expected to...
Apr 16, 2017
I have often thought about my journey with needing my lungs transplanted as a metaphor of dying in order to receive new life.Yesterday I woke up in that space between the days that the Christian...
Apr 05, 2017
Our meeting with the surgeon and several other members of the transplant team went very well. We have been given much to digest over the coming days as we await the transplant. Here are the basic...
Apr 03, 2017
Huge Update...I received a call today telling me I am now on the Lung Transplant List!! Tomorrow I will meet with the surgeon and do some more tests, etc. I was told the meeting will take two and...
Mar 09, 2017
Just a quick update--I am holding my own in rehab as long as I don't push myself too hard (and yet, hard enough) and I have lost some more weight...10 pounds til I hit the magic number and get on...
Feb 28, 2017
Hi. Time for a quick update before I go to bed. I Had a bit of a hiccup last Friday--I must have pushed myself too hard in rehab and ended up with enough symptoms that I was wheeled to ER to make...
Feb 18, 2017
I want to begin this update by expressing our deep gratitude for all of the support everyone is giving to us. Randy and I feel the multitude of prayers and well wishes showering us and holding us...
Jan 27, 2017
I am happy to be able to share that I am doing much better. My back is almost completely healed and I have been given good exercises to do when it does begin to spasm. This week in Rehab I have...
Jan 14, 2017
Much has happened since my last update. Unfortunately, last weekend I thought I was stronger than I actually was and I pulled a muscle in my back which sent my back into spasm. I was unable to do...
Jan 04, 2017
Back Updates for Karen Roberts-Sare Add Update
Jan 04, 2017 Hello to all,
I have completed my 5th day of Rehab and I am pleased with the progress I am making. Today I walked for 22...
Jan 04, 2017
Hello to all,
I have completed my 5th day of Rehab and I am pleased with the progress I am making. Today I walked for 22 minutes on the track (using the rollinator for balance) and rode a...