Hello.. This is Dave! I'm having a really good day today so I am writing part of this update! Some of you know that I have been in a wheelchair since 1995.. and had to take disability in 2008. Sharon and I wanted to let you know that we now have a YouTube Channel!! It's formal name is davensharontalk. Within the Vlog, we will call it "The Talk" ! This Vlog will take you into the daily life of our family as we navigate life with an ultra-rare metabolic bone disease. It should be lots of fun.. See you there! The Link to watch our 1st YouTube Video is listed below!
Blessings to All! Thanks so much for Giving! ..
Mar 20, 2017
We are so blessed by the thoughts, prayers, and gifts into Dave's HelpHopeLive fund with our current goal of a handicapped van. It's so exciting to see the balance growing towards our goal! Our current van has been in the shop for more repairs and each time we are thankful that our mechanic is able to keep it going for now. However, the need for a new van continues to grow and we are praying and hoping to be able to purchase it soon. Dave finished up physical therapy this month and we are so grateful for the progress that he has made since last June when he started physical therapy. He will continue exercises at home and at the gym where he took PT as he is physically able to. He had some problems with one of his knees in the last few weeks that we went to the Dr for and it was recommended that he sees the specialist as well soon. So please pray for wisdom as we continue to navigate Dave's health. Some have asked if Dave can drive a regular car and the answer is yes! He rarely drives or rides in a regular car due to his soft bones and fracture history without an incident.The handicap van has special seating in it so as to help minimize Dave's risk of fracture. We need the handicap van for Dave's safety as well as for transport of his power chair which weighs over 300 pounds and we need a lift or ramp to load it, which is the reason why we cannot purchase a regular car instead. Current indications with the response he is having to treatment has not given us reason to expect him to walk long distances in the future, although we do expect increased quality of life it seems that this particular hope is something we will have to pray for a different solution for. So with that projection in mind the power chair will still be needed and therefore transportation will be needed as well, making the van just as much of a need now as before he was receiving treatment.
Jan 25, 2017
We are so grateful for all the love, prayers, and support in our journey with Dave and his diagnosis of Hypophophatasia (HPP). Dave is still doing therapy and making encouraging progress. ...