Carly spent two weeks in hospital before Christmas. She left with lung function of 48% - very exciting! Her lung function is now down to 36%, and her BMI is down to 16%. That turned the excitement into worry lines on my forehead, but we're staying strong and focused. Staying healthy is tough!
Long hospital stays are helpful, but tough to keep up the same level of treatment at home. The demands of family make it difficult so we're looking into available support options. Our focus right now is to find ways to get more treatments and rest into the day to bring Carly's lung function back and GAIN WEIGHT!
To even be considered as a transplant candidate, Carly will need to have a consistent lung function in the low 30's and a BMI of 19%. The hard part is, lung transplants aren't a silver bullet. They typically only last about 5 years, so it's critical that Carly's native lungs stay as functional as possible for as long a time as possible. With increasing infections causing hospitalization, that's a tough row to hoe - but we're doing all we can!