Waiting and waiting.,, Thats the plan for now. I have Officially been Listed!!! It's taken 4 long months. Now we just sit around and wait for that call. That call to come into their hospital, so the staff can start the prepping process. Last time it was 22hrs. From the time of the call to being wheeled into the OR. Last time I was feeling a little more invincible. This time, I don't feel that. I must admit; I am scared this time. I'm scared of what I know is going to happen and the pain that I have to endure. But in the end of that is what it takes to have a better quality of life, then it's worth it. I've also had a strange feeling recently. A feeling of needing to be ready. The have all my ducks in a row. All my loose ends tied up. So I'm doing my best. And I hate to say unfortunately it is the holiday season and accidents do happen. It's hard to know that at the same time my family is celebrating that my donors family is grieving the loss of their loved on. But we care extremely thankful for this wonderful gift they have given me and to others. As time goes on. We are still in desperate need of support. My transplant journey has placed my family in extreme financial hardship. We can't do this alone. We need help from the community.
We have set up an account with HelpHopeLive. Don't forget, the end of the year is coming and we all want those tax deductions.
Aug 08, 2014
So My mother and I have made the Temporary Re-Location to Cleveland. We were so worried about housing and what to do. We were so blessed to find The Transplant House of Cleveland. The Transplant house was just opening up, just as we were to have our first appointments at Cleveland Clinic. So we ended up being the very first guests at the Transplant House. The timing was perfect, the location is perfect and the accommodations are perfect. We have our own little apartment with a kitchen, living room, bedroom, bathroom, its a perfect little oasis to come Home to after a long day of appointments. The Transplant House has really gone above and beyond to welcome us and to make us feel so at home. It's truly a "Home Away From Home".
The last few weeks have been appointments after appointments. We have had day after day where we are at the hospital all day long. I've seen practically every specialist there is. Many tests and procedures. I still have a few more tests to do, possibly a few more doctors to see then hopefully we can get my Re-Transplant presented to the committee, approved, and then listed for my Transplant.
Jul 11, 2014
So plans have change... Transplant Centers have changed. I have now switched my Transplant care over to Cleveland Clinic and Dr. Kareem, whom was my original Transplant Surgeon in Pittsburgh but...
Apr 16, 2014
I'm so glad to be home in Arizona. Altough I'm still not feeling my best, at least I'm at home for the mean time. I'm still struggling with daily nausea and vomiting. I'm still on the TPN (IV...