Transplanted! I wanted to try and give an update myself, typing takes me forever so I put it off. Anyways, I am re learning how to eat food, most things make me sick. I mostly stick to soups and things like that for now. Even my precious DR Pepper makes me sick right now :( The surgery took a lot out of me so Im pretty weak right now and need lots of help. My phone feels like a brick lol. I'm moving around more and more on my own, which is fantastic. Every day a little progress is made. I have lots and lots of doctor appointments, the hospital is my second home for now. I go to Pulmonary rehab to help get my strength back. It is really hard work, but I need to do it so I can play with Ben. I just plug along the best I can. Sometimes I get frustrated, which is totally expected, but I also am happy and hopeful. Progress will be slow, but as long as I move forward, that is all that matters. Slow and steady wins the race.
Apr 06, 2017
I am officially on the transplant list as of March 20th. I have already had a couple of offers and one dry run. I waited in the hospital for 24 hours and as I was waiting in pre op, the transplant fell through. The donor lungs simply would not function properly. My surgeon said I would have been in the hospital for weeks on a ventilator and could have had many more complications. I am very much ok with the fact that it fell through. I knew that it was a possibility and mentally prepared myself. I need to have a really good set of lungs. After waiting for 24 hours, I was ready to find out either way. It was a relief to get any answer. I hadn't eaten anything in 27 hours and so I was starving and just ready to stuff my face. I think I was 10 minutes away from having visions of my husband as a juicy hamburger. One day I will get another call and hopefully next time they will be the best lungs for me.
Before I got listed I was able to take my family to Disneyland. We really needed a vacation to emotionally recharge and refresh. It was wonderful to just forget about everything for a week and just enjoy time together and have a blast. It helped me and my husband feel much more ready to be on the transplant list. I can't wait to put a photo album together.
Feb 23, 2017
It looks like I will be placed on the list right around the 20th of March. They are letting me cross a very important item off my bucket list before I go on the transplant list. It is something I...
Feb 06, 2017
Last week I met one of the lung transplant surgeons. He seems like a really good person and a really good surgeon. He explained what the surgery would be like and how long I could possibly be in...
Jan 08, 2017
1-8-17 I have one more 24 hour test to undergo and a visit with the transplant surgeon. Both will be completed this month. After that my transplant team will get together and decide when I should...