It has now been six weeks since Patrick’s bilateral lung transplant. Some days we are in disbelief that this has all happened. Each day he gets stronger and heals a little more. He has worked extremely hard at pulmonary rehab for the last four weeks and will graduate on Wednesday – sooner than expected of course! He works out on the treadmill, bike, and elliptical (with NO oxygen!) and does arm and leg strengthening exercises. He is getting strong and keeping his new lungs in great shape! He has formed some lasting bonds with the other lung transplant patients and has been an inspiration for many of them. I too have become friends with some of the other caregivers. As strange as this may sound, this has been a blessing in our lives in many ways. We have experienced the unconditional love of our family through all of this and have stronger bonds than ever before. And, God has put some truly special people on our path including the doctors and nurses at Duke. Patrick has not experienced any rejection to this point and we are grateful for that. It is so incredible to see him breathing normally and not struggling anymore. What a gift we have been given. Our thoughts are always with his donor and we hope to contact the family some day. We give thanks to God every day for where we are now as we look back on where we were not that long ago. We trust in God that He will continue to grace us with His love and blessings, and we hope to bring those blessings to others in some way for all that has been given to us. Thank you Team PJ supporters!
Jun 05, 2017
Patrick begins pulmonary rehab this week. The Duke center for rehabilitation is excellent and he will attend sessions for working his muscles and his new lungs daily. We also have weekly visits to Duke Clinic for his post transplant care when we'll see his pulmonologist, nutritionist, pharmacist, and post transplant coordinator. He will also do pulmonary function tests as well as some other required assessments for after the surgery. The staples will remain in his incision for at least six more weeks, but it's healing nicely. He is of course on many medications that are preventing rejection and infection and he seems to be tolerating them well for the most part. We are in temporary housing (a nice little apartment) at this point as we felt that was best for after the surgery. He has to be very careful not to contract any infections and wear a mask when appropriate. It was so nice being at my brother and sister-in-law's house before the surgery and we miss them...but they are not far and still continue to take care of us! Patrick is off to an amazing start on this long road and I continue to be amazed at his strength. I know it comes from God and the love of our family and friends. He is surrounded by unbelievable people - starting with our boys and the rest of our family to the Duke staff and other patients we've met along the way. Seems God has put many people on our path that we are impacted by almost every day. Let the healing begin... go Team PJ!!
Jun 05, 2017
Wow! A lot has happened since my update from a few days ago!! PJ continues on the fast track as he has through this whole process, and was released from the hospital on Friday afternoon!! The team...
Jun 01, 2017
It has been two weeks since Patrick received his new lungs. He has been given a remarkable gift – a second chance at life and we are forever grateful for this blessing. Our boys, Patrick’s...
May 21, 2017
THANK YOU everyone for your prayers, love, and heartwarming thoughts for PJ. He now has new lungs!! Surgery went very well and he is making excellent progress. Day two in ICU and he will be up...
May 09, 2017
The journey for Patrick is moving along. We are now on the next phase as we arrived in North Carolina (Duke Medical Center) on April 25th. After the amazing support of our family and friends at...
Apr 09, 2017
Patrick’s journey toward a lung transplant continues. We spent a week at Duke University Medical Center participating in a transplant evaluation. As a result of the evaluation, they have now...
Mar 19, 2017
This incredible demonstration of support, love, and encouragement has gone far beyond our expectations. We’ve surpassed our goal!! In addition, we’ve received many notes, letters, and expressions...
Mar 06, 2017
We are getting so close to our goal! This is amazing! There aren’t words adequate enough to express our thankfulness. It is with the support and well wishes of all of you that we are moving...
Feb 19, 2017
We continue to be amazed at the generosity of all of you in supporting and donating to this campaign for Patrick. He is feeling good, trying to stay active, and participating in pulmonary...
Feb 13, 2017
We are overwhelmed by the outpouring of love and support at the start of this campaign for P.J. Thank you to everyone for your prayers, heartwarming comments, and donations. We feel so blessed!