Wow! It's been 7 months now that I was transplanted. I'm always thankful for the blessing of my donor and the family. Our journey has been filled with blessings of joy, happiness, sadness, minor setbacks, great accomplishments & overwhelming love. God is so amazing in every way! He gives us days filled with sunshine, cool cloud formations, trails throughout the natural beauty of this earth, and awesome people to share our blessings with and help us through the trying times. I have an unbelievable partner, Kathy, to walk with me on this journey, who knows all of the highs and lows. For the record the highs out weigh the lows by far!! Our boys Chris and Brad, have shown great strength and courage in the way they handled themselves throughout this ordeal. Their love has helped us through this more than they know. We had a fantastic day at the Welcome Home Golf tournament on October 2nd. Special thanks to Tom and his crew and all the participants. I also want to thank Emily....we are so thankful for her artistic talents and for the time spent supporting us throughout this journey. We enjoyed a weekend on Cape Cod for the Oyster Fest with Steph, Bob, Marybeth & Marty. We had morning coffee looking at the ocean with easy conversation, we enjoyed the beauty of the sunsets, board games, and just hanging out. Throughout this journey I've shared many special times with my siblings Joe, JoAnn & Pammy, talking, laughing, having lunch and just spending time together. I also cannot say enough about Mom & Dad (Scozz) and their endless prayers, support, and love. I got clearance to fly in November ...first destination - San Diego to see Brad!We celebrated Kathy's birthday and our 31st wedding anniversary hiking Torrey Pines. So happy to do that with my girl! We shared great times with Brad, Natalie, Marybeth, Marty, Pete & Debbie. We headed down to Duke for my 6 month check up in November. I received a diagnosis of low level rejection (minor setback). Treatment was very high doses of IV steroids for 3 days. I did experience some not so good side effects including high blood pressure, high blood sugar, shakes and feeling like I was in a fog for 2 weeks. While in NC we always have the pleasure of spending time with Tom, Karen and family (Amazing). Visiting the rehabilitation center and the hospital to see the nurses, doctors, and patients always warms our hearts as well. Also had a chance to go to ICU to visit with my rehab buddy Serena (Godspeed on recovery) we prayed with her and gave her a big shot of encouragement! Another highlight post transplant was going to dinner and the Amos Lee concert with Christopher, Rich & Dan. We had great conversation and Amos Lee was amazing! Seeing him had special meaning to me because Amos Lee was the music I requested as I laid there on the operating table before surgery started. I'm so thankful I got to see him and share it with my son Christopher and two special people in my life. I also got to participate in the Southbury Turkey Trot with Kathy, Chris, Joe, and Spencer & 2000 plus others. Trot was an over statement, Haha more like walk for sure! I realize that all of this would not have been possible without my donor, my family, my friends, and of course my amazing doctors at Duke. I am forever grateful for this second chance in life. God bless you all!
Till the next update, Merry Christmas and Happy Holidays to all!
Sep 07, 2017
Here we are 16 weeks from one of the most serious surgical procedures a person can have. Patrick receiving new lungs still seems surreal to us, although the reality of it is beginning to sink in. He had his three month post transplant visit at Duke and the bronchoscopy showed no signs of rejection or infection, which is FANTASTIC news! He continues to exercise and work out every day and follow his medication regimen which is extensive. The healing continues and there have been a few small bumps in the road, but we stay strong and persevere. We have been abundantly blessed by our family and friends, the people we've met, the places this journey has taken us, and the constant love and support we've received. We will be back at Duke in November for another bronchoscopy and other tests. We are beginning to get comfortable with our new life and new normal. We think of each day as a gift! We ask for prayers as this journey continues. We send our love to everyone and especially thank God for his constant companionship. Team PJ...still going strong!!
Jul 01, 2017
It has now been six weeks since Patrick’s bilateral lung transplant. Some days we are in disbelief that this has all happened. Each day he gets stronger and heals a little more. He has worked...
Jun 05, 2017
Patrick begins pulmonary rehab this week. The Duke center for rehabilitation is excellent and he will attend sessions for working his muscles and his new lungs daily. We also have weekly visits...
Jun 05, 2017
Wow! A lot has happened since my update from a few days ago!! PJ continues on the fast track as he has through this whole process, and was released from the hospital on Friday afternoon!! The team...
Jun 01, 2017
It has been two weeks since Patrick received his new lungs. He has been given a remarkable gift – a second chance at life and we are forever grateful for this blessing. Our boys, Patrick’s...
May 21, 2017
THANK YOU everyone for your prayers, love, and heartwarming thoughts for PJ. He now has new lungs!! Surgery went very well and he is making excellent progress. Day two in ICU and he will be up...
May 09, 2017
The journey for Patrick is moving along. We are now on the next phase as we arrived in North Carolina (Duke Medical Center) on April 25th. After the amazing support of our family and friends at...
Apr 09, 2017
Patrick’s journey toward a lung transplant continues. We spent a week at Duke University Medical Center participating in a transplant evaluation. As a result of the evaluation, they have now...
Mar 19, 2017
This incredible demonstration of support, love, and encouragement has gone far beyond our expectations. We’ve surpassed our goal!! In addition, we’ve received many notes, letters, and expressions...
Mar 06, 2017
We are getting so close to our goal! This is amazing! There aren’t words adequate enough to express our thankfulness. It is with the support and well wishes of all of you that we are moving...
Feb 19, 2017
We continue to be amazed at the generosity of all of you in supporting and donating to this campaign for Patrick. He is feeling good, trying to stay active, and participating in pulmonary...
Feb 13, 2017
We are overwhelmed by the outpouring of love and support at the start of this campaign for P.J. Thank you to everyone for your prayers, heartwarming comments, and donations. We feel so blessed!