It has been quite the twisty road since the last post. A fair share of successes and setbacks both.
Two separate times she was transported from the rehabilitation hospital back to UNMC. The first was due to a problem with the incision that required the entire left side to be reopened along with an aspiration causing an infection in the new lungs. It really scared us all but she recovered nicely. The wound was an extremely challenging, painful experience for her. Wound vacs, painful adhesive bandages, a lot visual inspections, approximately 30 stitches, another month to heal her skin. She currently has just another 3/4" of minor healing left to do.
Second trip was another aspiration, the Dr. thinking from swallowing food trials. Again, another trip to the med center and another week on antibiotics. There were a couple more issues that came up that required extra days and additional tests proved false.
So that brings us up to date. Angie was brought back to Madonna June 19th ish. She has finally passed her swallowing tests and was allowed soft chewable foods. Shortly after, she was taken off all food restrictions and graduated from speech therapy. Her appetite and caloric intake is also improving. She currently is only getting nutrition with the feeding tube for 10 hours overnight. Once she can eat 2200 calories a day consistently and the last bit of incision wound finishes healing, the JG tube can come out. It will be good when that happens as its pretty painful for her.
Just this morning her trach was downsized with a new metal one. It's suppose to reduce the mucus buildup and make it easier to cough past it. Its hopeful the new trach will only be in until early next week.
Her scheduled release date from Madonna is set for July 17 at which point she will be allowed to go back to OmaHome apartment. Once there, she will go to respiratory therapy every morning during the week. We don't know yet how long that may be before released to go back to Spring Hill.
As many of you know, we have been blessed by the prayers and support from so many people. It has sustained us both spiritually and financially in a time of great need. We are coming to the end of our resources collected from the BBQ benefit dinner and I would like to ask those who can to prayerfully consider donating to help us with a final push to get her home and eventually back to work. Talking with her, it is her goal to get back to work and it might take anywhere from 3 months to the end of the year to reach it. It would be very difficult to predict.
I would like to thank everyone first and foremost for the prayers and donations. Its been a crooked, difficult, sometimes scary journey that has reach the final leg of recovery. We send our heart felt thanks and love to everyone.
John and Family
May 17, 2017
Madonna Rehabilitation Hospital
Angie has made tremendous progress in the last two weeks.
She has been transferred from Nebraska Medical to Madonna Rehabilitation as of last Friday, May 12th. The staff is amazing, nice rooms, new building, almost a spa day!
Her most significant improvement has been her vent trials. The process of vent weaning takes multiple days and is results driven. That being said, she spent last night Off Vent the entire night. She is slightly tired from breathing on her own but her O2 and CO2 levels are great.
Angie's next challenges include final weaning from vent, trach removal, and strengthening her tongue and throat muscles to allow her to eat foods. As with the other rehab goals, this is something that will take days and/or weeks.
Her physical rehab is off to a good start. She is weak throughout her body but is highly motivated and is working really hard. The rehab staff love working with her as she is eager and loves exercising.
Angie's short term goals include final ventilator weaning, tracheoscopy removal, and moving back to OmaHome (Omaha apartment) by June 2nd.
We have been informed today her organ functions are really good and kidney functions are perfect. She is swelling like a balloon due to high dose of prednisone and will take a while to flush out the fluids.
Thanks to everyone for their support, prayers, words of encouragement. We both send our thanks and love to all.
Apr 26, 2017
Hello!!! Sorry I have not been able to update Angie's progress, it's been pretty busy.
Some may already know but after removing the ventilator Saturday, she became too weak by early Sunday...
Apr 22, 2017
Today Angie came off the vent. It was a little bit of a challenge for her but she succeeded.
She is needing oxygen assist today but her breathing has started to slow down has gotten slightly...
Apr 20, 2017
Angie has made it through surgery in great shape. She was moved into ICU around 1:00 this morning and stabilized really quick. The surgeon said transplant went well with no complications.
Apr 07, 2017
Angie is still waiting for the phone call. Things have settled in to a pretty decent routine. I cook, she only eats half, and complains about raw broccoli. Things are pretty...
Mar 21, 2017
WOW! After the week of testing, it's been a whirlwind of activity. Angie came home last week from Omaha with an infection of some sort that really made it tough for her. Dr gave her a couple of...
Mar 14, 2017
Angie is resting after the very difficult testing week. She has got an infection right now and we are monitoring her very closely. Doctor has given her couple of antibiotics and instructions not...
Mar 11, 2017
Angie has completed her week of transplant testing. It has absolutely worn her out and she is now back home and resting. I'm sure it will be a few days to get her strength back.