It seemed to take all day for our med issues to be resolved. The shipment showed up at the hospital around nine. We were finally discharged just before 11:00pm made it to the hotel around 11:30 pm. Exhausted. But excited.
How poignant that Columbus Day weekend would be when we begin our journey into this brave new world.
Oct 05, 2017
They are planning to discharge Kevin tomorrow. This is both exciting and overwhelming. We will be staying in Boston for a month to be close to the hospital.
This is a most exciting and eventful journey. We look forward to getting back to "real life" and finding out what our new "normal" is.
Oct 02, 2017
We were expecting Kevin to have a bronchoscopy today but it turns out it was scheduled for tomorrow. This is routinely scheduled for three weeks post transplant to do a biopsy to check for any...
Sep 22, 2017
Kevin continues to heal. Pain is becoming more of an issue since they removed his epidural. Everything is s process of reevaluation.
This morning he is having a bronchoscopy. Hopefully this...
Sep 19, 2017
Belated update as the previous one was accidentally deleted.
Kevin has new lungs!!
On Wednesday, September 13 we got the call that there was an offer of new lungs. We were advised to arrive...
Aug 11, 2017
We were all blessed as a family when Kevin made the decision to be baptized on Sunday, August 6, 2017. Facing debilitating, life-threatening lung disease has brought about many changes for Kevin. ...
Aug 10, 2017
On July 31 we were given the official placement on the transplant list. At that time Kevin was listed as number 16. We are told that the usual wait is about 39 days. That would mean that he...
Jul 27, 2017
Wow! This has been quite a journey!! Kevin has had over 90 vials of blood drawn, two major oral surgeries, successful prostate surgery, and a stent due to coronary artery disease! Tests upon...
Jun 09, 2017
We have been in s holding pattern and haven't posted for a while. Today I sit in the waiting room in the cath lab at MGH while they prepare Kevin for the placement of his stent. He is fine but I'm...
May 02, 2017
Kevin has had some "dumps in the road" toward his lung transplant. First he had to have prostate surgery due to urinary retention. That surgery was successful in spite of a UTI that required that...
Apr 20, 2017
During some of the routine testing that Kevin had at MGH on Monday they determined that he has coronary artery disease. This was a big surprise because no preliminary study had indicated a problem....
Apr 14, 2017
Thank you for all your thoughts and prayers. Kevin come through the surgery well and come home last night after the completion of the course of antibiotics. He is doing better than he imagined. ...
Apr 11, 2017
This is definitely an adventure! Yesterday while we were in Boston for pre-transplant appointments we got a phone call from Kevin's urologist in Manchester telling Kevin that he wanted him...
Apr 04, 2017
What an exciting week! I last posted March 29 which was day 2 of 4 days of appointments. This week Kevin will have 3 days of appointments. Next week 4 days including prostate surgery. The...
Mar 29, 2017
We are in Waltham at MGH West for a full day of testing. This is all for the gastrointestinal system. The transplant team requires that all systems be in working order before they do the...
Mar 24, 2017
We are back in Boston for more appointments and tests. The transplant team has specialists from every discipline and they all have to meet with him and contribute to the decision. If any issues...
Mar 18, 2017
Kevin continues to complete items on the required checklist of tests and procedures. This week included a CT scan to determine the size of lungs that he will require. The lab took 27 vials of...