Today marks 17 weeks post transplant. As we conversed with several of our children today, we are amazed how some of us continue to wake almost automatically at 2:00 am on Sunday mornings - the hour we received the call that John was offered a heart! Needless to say we are grateful for that 2:00 am call and equally glad to be at this place in time.
The summer was very challenging. In early July John became ill and was hospitalized for 10 days. He had a CMV virus and was released with a PICC line and IV meds. The rest of the summer was a whirlwind but hopefully things will level off now. The last few weeks have been very encouraging.
On August 15, John's CMV virus levels reached the benchmark for two weeks in a row. Consequently the PICC line was removed and the IV meds were discontinued. We are overjoyed for his improvement and that he has been freed of the 2xs a day regiment of infusion.
The time between his U Penn appointments and his heart biopsies has been lengthened which is also freeing. John is trying to navigate a "new norm." He is beginning a new school year routine working in his church relations and development position part time at LMS. Debbie had a mishap and fractured her wrist requiring surgery in August but has tried to make up for lost time with the grandchildren in the last few weeks before school started visiting some of their favorite spots and adding some new adventures.
As we head into September we anticipate the birth of two grandchildren. We are delighted to move beyond the hard times of the summer and in to this new phase of healing and restoration! We are thankful for each of you who have walked with us supporting us with your prayers, visits, gifts and words of encouragement.
Love, The Denlingers
Jul 20, 2017
July 20th Update Happy Birthday, John! On Saturday we came to the beach for our annual family vacation at Ocean City. As we approached the boardwalk and the ocean, tears rushed in like waves ... we know how blessed we are to be able to return to this place where we have vacationed for forty years. WIth all that has happened in the last three months not one of us could have been assured that this day would come. Even as late as last week John was hospitalized at U Penn Hospital. He had been in the hospital off and on over a two week period and was extremely ill and weak from the CMV virus. He came home on IV medications that we administer two times daily. A visiting nurse has come both to our home and to the beach house to change his PICC line dressing and to draw blood and the specialty infusion meds have been delivered at both locations as well. We marvel at the coordination and resourcefulness of the Penn team in helping to make this "get away" happen. Because of the PICC line, we are handling vacation a little differently - sitting on the edge of the water and under an umbrella instead of diving into the water and helping the grandchildren ride the waves. We are on the beach a lot less but still enjoying every minute of our beach, porch and boardwalk time with the family. We keep saying .... next year, next year! But for now we are grateful for the blessings of this year and for a chance to have some good times away from home and Philadelphia and the harder times! Another highlight for John's birthday was going from OC to the Linc stadium last evening in Phila to see the US vs El Salvador game with Jeremiah and the boys. Today more surprises are in store as several of his sisters will join us for a day at the beach. His brother Ken and his wife Bev surprised him with a visit at OC yesterday! So many blessings!!! Happy Birthday, John.
Jul 05, 2017
John is now nine weeks post transplant. We continue to experience many blessings but there are tough challenges as well. The biopsies and testing continue to yield good results and several...
May 22, 2017
Dear friends and family, I can hardly see through the tears as I write these words—my dad is home! After over a month of wild, scary, wonderful days, both before and after transplant, my dad is...
May 15, 2017
Dear family and friends, Today marks the 32nd day. Several days ago I optimistically packed my suitcases and moved out of my room at the Transplant House. As the day progressed I came to realize...
May 10, 2017
Day 25 of the journey ... from home to Lancaster General to U Penn. who could have known? As I pull John's clothes out of the suitcase stashed away for 25 days - the clothes he wore to the...
May 03, 2017
Easter Weekend April 2017 was the beginning of a life change and an unexpected journey for John and our family. On Good Friday evening, following a full day of preparation for the events of the...