I have not written in a while. peter is still at Mass General in Boston, MA. It will be three months on October 11th. Peter has had a very rough road. He had an allergic to Heparin that will need amputation to the tips of two fingers. This won't be done until he is better. He has 1 remaining chest tube in place with continued drainage. His trach has been capped so he is talking to us. He still has his feeding tube in and has not started eating as yet. He has been out to the chair but has not stood as yet. PT is working with him on this and OT is working on strengthening his upper extremities. Peter has required several blood transfusions and many test and bronchoscopies. He is now alert but tires easily. Most times he is breathing room air but occasionally needs oxygen via nasal cannula at 1-2 liters.If I look back to day one after surgeries, he has improved but the progress has been slow and we take those progressions with pride for his strength and much joy. Thank you to his donor and family for giving him such a beautiful gift.
Sep 25, 2017
Whoever you are who made that amazing donation, thank you! Thank you soo much! Dads still working to recover, he’s string I’m positive he’ll get there. This has been such a long hard road for him. I’m amazed at your generosity! Thank you again!
Jul 24, 2017
Day 13--Still in ICU. Intubated, this time b/c increased respiratory rate and getting tired. Still has a slight temperature. Continues with Rt. thumb and index finger discoloration after 2...
Jul 17, 2017
On 7-11-17, Peter received his call that a donor was found for him. We left to go to the hospital and at 4 PM we were told the donor was a viable match. He did not get out of surgery until 1 AM and...