Today we join with Hunter's loving supporters to extend our heartfelt condolences to Hunter’s family and friends. We wish you peace and comfort at this time of sorrow. – Help Hope Live Staff
Jan 17, 2018
Unfortunately our superhero has lost his fight with Biliary Atresia. He has touched so many lives, blessed so many people without meeting but a few in his short time. He will always be loved and cherished. Flying little warrior, flight high.
Jan 09, 2018
Hunter is being admitted into the hospital today. His belly is up to 53cm, his Pediatrician wrote a note to the ER staff, it really makes you sick to your stomach. Patient has end stage liver...
Jan 03, 2018
Happy New Year! Hunter had a very happy New Year at home with his family! He had a GI follow up yesterday and everything looks stable. His PELD score is 39. He's gaining weight, retaining...
Dec 26, 2017
On December 22 Hunter was officially listed for transplant! Hunter is home enjoying the holidays with his family. He had a great first Christmas and we are all looking forward to a transplanted,...
Dec 14, 2017
Hunter is still home!! We are praying he can stay home for Christmas or if he has to be away it's because he is getting his Multi-Visceral Transplant! Dr up'd his lasik every 6 hours, so...
Dec 01, 2017
Hunter had an appointment with the Miami Transplant Team today. They have to verify financial approval (insurance) and then he will be listed for transplant! We should know something next week. ...
Nov 27, 2017
Hunter was home to enjoy Thanksgiving with the whole family. He had a wonderful day, eating, playing and napping. Unfortunately Friday night/Saturday morning his stay at home ran out and he's...
Nov 13, 2017
Hunter is home from the hospital after battling a nasty cold. He has an appointment Dec 1 with the transplant team Dr. Hopefully at that time he will get listed. So nice to have him home for a bit!
Nov 03, 2017
Hunter is currently in Arnold Palmer Hospital in Orlando. Unfortunately a simple cold is very hard on a BA baby. With all the fluid build up in the abdomen his little lungs have no room to...
Oct 30, 2017
Hunter is home from Miami for now. While in Miami he had a venogram completed, drew blood for genetic testing and a TB test. Once all of the results are back and Hunter has received all of his...
Oct 18, 2017
Hunter has been transferred from Arnold Palmer in Orlando to the Miami Transplant Institute. Today (10/18/17) he will begin his evaluation and testing to obtain his PLED score, the PLED score is...
Oct 05, 2017
Hunter was born with a rare liver disease called Biliary Atresia. After several trips to a pediatrician he remained undiagnosed until his mother refused to accept the statement "your baby is just...