Hunter had an appointment with the Miami Transplant Team today. They have to verify financial approval (insurance) and then he will be listed for transplant! We should know something next week. This is excellent news!! Thank you for your generous donations so far, we have a very long road ahead of us!
Nov 27, 2017
Hunter was home to enjoy Thanksgiving with the whole family. He had a wonderful day, eating, playing and napping. Unfortunately Friday night/Saturday morning his stay at home ran out and he's back in Arnold Palmer. He's got a viral infection, elevated white blood cell count, reduced red blood cell count and his belly is up to 54 cm. Poor fella. Friday is his appointment with the Miami Transplant doctors. Praying he gets listed soon!
Nov 13, 2017
Hunter is home from the hospital after battling a nasty cold. He has an appointment Dec 1 with the transplant team Dr. Hopefully at that time he will get listed. So nice to have him home for a bit!
Nov 03, 2017
Hunter is currently in Arnold Palmer Hospital in Orlando. Unfortunately a simple cold is very hard on a BA baby. With all the fluid build up in the abdomen his little lungs have no room to...
Oct 30, 2017
Hunter is home from Miami for now. While in Miami he had a venogram completed, drew blood for genetic testing and a TB test. Once all of the results are back and Hunter has received all of his...
Oct 18, 2017
Hunter has been transferred from Arnold Palmer in Orlando to the Miami Transplant Institute. Today (10/18/17) he will begin his evaluation and testing to obtain his PLED score, the PLED score is...
Oct 05, 2017
Hunter was born with a rare liver disease called Biliary Atresia. After several trips to a pediatrician he remained undiagnosed until his mother refused to accept the statement "your baby is just...