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Family and friends of Demina Johnson are raising money to pay for uninsured medical expenses associated with transplantation.

Demina has chosen to fundraise with Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for donors. Donors can be sure that funds donated will be used only to pay or reimburse medically-related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.

Updates (1)

December 15, 2017

My name is Demina Johnson I am 21 years old fighting a battle with heart disease.

After I gave birth to my handsome son, I was diagnosed with congestive heart failure, specifically Peripartum Cardiomyopathy. When I found out that bad news, I was devastated. I couldn’t believe I had heart disease since I was just a young, healthy, pregnant woman! Now I am fighting a deadly disease.

All I can think about is being here for my son and watching him grow up. I cannot think about his being without a mother.

I had to get a PICC line put in when my son was only 2 months. It has been very difficult being in the hospital and not being able to bond with my child. My family brought him to me, but it was different.

I did my research on a Left Ventricular Assisting Device (LVAD) plus open-heart surgery. I found out that there is high rate (98%) of people having successful results. I spoke to a few candidates that already had the LVAD. They taught me the ups and downs of it. I really appreciated hearing what they had to say.

I am in a tight spot in life and all I want and need is support to get me through this struggle. I can’t be selfish. I need to think about my son because he needs me more than anyone. I do not want to show him any signs of failure. All that I am going through and dealing with makes me stronger. This experience has really opened my eyes a lot.

I went under heart surgery in April 2017. I didn’t leave the hospital until May, a week before my birthday. It was very hard! I was so weak and fragile and I lost so much weight that I couldn’t hold my son. All I could do was look at him. He really wanted to be near me. I felt like a bad parent but I had to heal or he wouldn’t have me around for long.

I am now on several different medications. Sometimes I feel down about the situation asking God why me, I did everything right. I guess God just has this life changer in store for me and I am doing a great job fighting through until this battle is over.

I want to Bring Awareness to this disease that many in our community doesn’t know exists until a loved one is impacted by it‼️ Awareness of this disease is very important to me.

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