My name is Demina Johnson I am 21 years old fighting a battle with heart disease.
After I gave birth to my handsome son, I was diagnosed with congestive heart failure, specifically Peripartum Cardiomyopathy. When I found out that bad news, I was devastated. I couldn’t believe I had heart disease since I was just a young, healthy, pregnant woman! Now I am fighting a deadly disease.
All I can think about is being here for my son and watching him grow up. I cannot think about his being without a mother.
I had to get a PICC line put in when my son was only 2 months. It has been very difficult being in the hospital and not being able to bond with my child. My family brought him to me, but it was different.
I did my research on a Left Ventricular Assisting Device (LVAD) plus open-heart surgery. I found out that there is high rate (98%) of people having successful results. I spoke to a few candidates that already had the LVAD. They taught me the ups and downs of it. I really appreciated hearing what they had to say.
I am in a tight spot in life and all I want and need is support to get me through this struggle. I can’t be selfish. I need to think about my son because he needs me more than anyone. I do not want to show him any signs of failure. All that I am going through and dealing with makes me stronger. This experience has really opened my eyes a lot.
I went under heart surgery in April 2017. I didn’t leave the hospital until May, a week before my birthday. It was very hard! I was so weak and fragile and I lost so much weight that I couldn’t hold my son. All I could do was look at him. He really wanted to be near me. I felt like a bad parent but I had to heal or he wouldn’t have me around for long.
I am now on several different medications. Sometimes I feel down about the situation asking God why me, I did everything right. I guess God just has this life changer in store for me and I am doing a great job fighting through until this battle is over.
I want to Bring Awareness to this disease that many in our community doesn’t know exists until a loved one is impacted by it‼️ Awareness of this disease is very important to me.