Nick had a small bout of rejection that looks like is reversing now. There is a balance between keeping his immune system suppressed enough not to cause rejection and not suppressed enough for his body to fight off the BK Virus. The last change in medicine didn't work - his body rejected the kidney rather than fight off the BK virus.
Aug 15, 2017
Nick is doing great! It is 2 months post transplant and things couldn't be better. He completed his first college class with an A and is looking forward to fall semester. He will be able to go away to school next fall.
Jun 20, 2017
Thank you everyone for your love, support and prayers. We still have a long road ahead of us but so excited to have a new gift of life! Our thoughts and prayers also go out to the family that was...
Jun 20, 2017
Nick received a kidney on June 16, 2017!
May 31, 2017
Another donor was tested and was negative for one of the antibodies but positive for the other. Still in search for a kidney!
May 03, 2017
We are still testing for living donors and waiting for a call that a kidney has come in from a cadaverous donor. Either way is fine with us!
Mar 27, 2017
Friday Delaney was tested and today we found out she cannot donate to Nick either. He is still Status 1 so a cadaverous kidney can still come in for him.
Mar 17, 2017
We found out Nick is Cancer Free and we can start the transplant process again!
Unfortunately March 2017 we found out that Tanner is not a complete match for Nick and cannot donate. Delaney has...
Feb 08, 2017
Monday, February 13th Nick will have another PET scan to see if the cancer is still gone. If that comes back clear then we are on track to do the transplant ASAP! There is a light at the end of...
Nov 08, 2016
Last December Nick was granted a wish with the Marty Lyons Foundation www.martylyonsfoundation.org/ and was able to meet Stephen Curry and watch the Golden State Warriors play. We also were able...
Dec 01, 2015
Dec 1, 2015 We received word from the Dr. that we will be doing dialysis for another year. Research shows that waiting two years after the diagnosis of the PTLD has the least affect on the...
Sep 15, 2015
Nick had his hemodialysis catheter removed last week and his fistula is working beautifully! He was able to wake surf and swim at his friends lake house which he hadn't been able to do for 9...
Mar 04, 2015
Nick has finished his last infusion for the lymphoma. Now we are just in a holding pattern - making sure it doesn't surface again and doing hemodialysis 3 times a week.
Feb 09, 2015
Nick has been diagnosed with PTLD, a form of lymphoma. It is currently only in his throat and is being treated. His kidney transplant is on hold until this is treated fully.
Jan 28, 2015
We have tentatively scheduled Nick's transplant for March 2nd. Fortunately his older brother Tanner is a match and will be the donor!
Aug 04, 2014
Nick celebrated his 10 year transplant Anniversary in December 2013. Unfortunately now at the age of 16 his kidney is starting to fail and he is in need of another transplant. We are in the...