November here in Durham is BEAUTIFUL!!!! I am doing as well as expected at 10 weeks out from surgery. I have graduated from rehab, meaning I have to work out on my own now. I am slowly getting on top of things I only wish I could 3 months ago! I am able to sweep, do laundry and keep up with dishes. So, while the rest of our little home may be chaotic, I am happy with myself. I am still on sterile water precautions; so all my bathing, drinking and washing is still a chore. I only have a couple spots left in my incision that are almost, but not quite healed enough for Durham water (there is a microbacterium in the water here that is not filtered and it can easily infect me).
Stephen and I are safe from the NC fires, they are a good 200 miles away. However, with the high and low pressure systems hovering near us, we are getting the smoke. I am having to stay indoors because the air quality is in the red.
I am experiencing some rejection right now, which is normal. They are going to treat me with some high dose steroids which should knock the rejection back.
Oct 20, 2016
This past week or so has been so full of adventure! I feel so blessed to be able to see and do what's around me. One day was spent at the local gardens, which is huge! We went to the farmers market and bought some of our own flowers. We spruced up our front porch, and I started sweeping. My friend, Taylor, graduated from rehab and had the most delicious cheese ball for her party! These are just a few of the things I have been up to.
I also saw the doctor today, my lungs are stable at 50% and my weight is finally at a good point (even though I had to buy new jeans). I got my feeding tube removed which thrills me; so no more tugging and snagging on things! I also get to pack up my bipap machine! Things keep improving and I keep venturing out!
Oct 19, 2016
Thanks to all who came out and helped with the yard sale. It was a great success and our goal was met. We could not have done it without your support. Thank you!!
Sep 29, 2016
From Michele - Time for an update! Not only because its been a while, but also because I have enough use of my left fingers from the arterial IV mishap. I went to clinic yesterday and my pft's were...
Sep 28, 2016
From Stephen on September 19 - Finally! I'm so grateful for everyone who supported my wife, Michele, and all the Duke Staff, Doctors, and Surgeons who brought her to this new Chapter in her life....
Sep 02, 2016
Hey everyone! It's me! Lol. I got my lung transplant on Monday August 29th! My progress has been great and fast according to the docs. But there have been stepbacks that I will ask you to pray...
Jul 21, 2016
On August 21, 2016 Michele posted on facebook - My coordinator just called me. I am officially LISTED! Now the real wait begins.
Jul 07, 2016
My workouts have been steady going. Not much improvement but not declining either. I got my test results back from my bone scan. They show a 10% decline since my last scan. That means no more...
Jul 02, 2016
It's been a good week for us, not too busy. Wed, I had clinic which included blood work, pft, chest xray and a bone density scan. So far, all of my results are either good, or where they expect...
Jun 24, 2016
I am past due on everyone, so here goes. Last week was quite frankly very tough. Monday was my first day back to rehab/therapy since my feeding tube surgery; but I did well. The annoying part is...
May 26, 2016
5 days till move in and we finally have a place to live!!!! Thank the Lord! This has been a huge burden on us because everywhere I called has been full or too expensive. We will be moving to a nice...
Apr 22, 2016
Stephen and I leave tonight for my week long evaluation at Duke. At the last visit in February, I saw a transplant pulmonologist, infectious disease, psychology and financial. I also had several...
Feb 20, 2016
Stephen Manuel Hernandez and I are officially home from my first set of transplant evaluations. I was poked, prodded, drained and pushed past my limits. Thank you all for the prayers and well...
Feb 20, 2016
I have waited a while to say anything but I now have a set date, soo.... My pulmonologists have both expressed for a few months that it is time for me to see about transplant again. (As a reminder,...
Sep 06, 2013
We have returned home! As a valued member of “Breathe Easy Team Michele” we wanted to give you an exciting update. After completing the pre-transplant physical therapy, the transplant team saw an...
Jul 05, 2013
Michele's July 4 post I spent a long day in the clinic yesterday. I got the Shingles preventative shot. Because that is a live virus vaccine, I cannot go to my normal workout because I would put...
Jul 05, 2013
Michele's July 1 post I'd call it a good day. I walked my 20 minute mile and then I biked 2.37 miles.