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Family and friends of Graylyn Passineau are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.

Graylyn has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.

Updates (4)

October 1, 2020

I’ve kind of waffled back and forth on whether to upload any pictures of the less than positive variety. I know they are not the way I want anyone to think of me, least of all my grandchildren.

However, they can all see my fundraisers so that just might be a moot point. Maybe it’s pride that makes me want to keep the ugliness of this disease from them.

I am uploading one picture from a fall on August 6th. I’ve sent this to my kids and they may have shown my grandchildren.

I have good blood pressure. However, I’ve developed Orthostatic Hypotension… that means my blood pressure drops markedly when I stand up. In addition my disease makes my oxygen saturation too low at times. If I stand and my bp drops at the same time as my oxygen saturation drops the result is a blackout. It literally is like turning a light switch off. Between my bp and my O2 saturation my brain isn’t getting enough oxygen so it shuts off. One minute I’m standing and the next my wife is picking me up off the floor. This picture is from my last blackout 8/6/20

September 24, 2020

Uploaded a picture of my kids (all adults at this point) and their kids at Christmas time 2018

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