My funding has lasted me 6 years but now my account is nearly depleted so I need to do more fundraising to help continue paying for my uninsured meds. The biggest one being for my stomach. I had to have surgery on my stomach to prevent refluxing into my lungs which leads to rejection and the surgery destroyed some of the nerves causing some gastorparesis. I need to take the med or I will have sever pain and nausea due to food sitting in my stomach and not emptying for a long time. When I eat my next meal there's no room for anything so these meds help things move along. The only med they have for it that is FDA approved, I have bad side effects from so I have to order a med from the UK (that is approved there) with a prescription from my doctor. So this all has to be paid out of pocket and runs around $100 a month! On top of that I have several other vitamins and supplements (like Ensure) to help me maintain my weight and provide nutrition that my body has a hard time absorbing from food alone. I am on disability so my income is very low and I have a hard time paying for these meds so I desperately need your help! Thank you to all those who have helped and those how help in the future!
Aug 07, 2015
In 2 days I will be 6 years post double lung transplant! It's been a fairly stable year. Still have stomach problems from past surgeries. Got an EGD done and the doctor said there is nothing they can do b/c some of the nerves have been cut. Lungs doing good but still a little junky sometimes. I got to mark something off my bucket list....I got to go on a cruise with my family in March!!!!! My Aunt was kind enough to buy me a ticket and it was the best vacation ever!!! 13 of us total! Unforgettable memories I will always cherish! I keep busy with constant problems with insurance and pharmacies and lots of doctor's appointments. I'm living with my boyfriend of 3+ years and my 2 dogs and half the time my boyfriend's daughter lives with us who is now 15! Between all of those things, I stay pretty busy. Still sleep for long hours but manage to usually get some stuff done. We also have an awesome little Koi pond that I help keep up and feed and that's where I go for some peace and quiet. I have my annual check up in Sept. so hopefully it all goes well. A little concerned about some irregular heartbeats I get once in a while and not the best kidney function but I guess that's expected with all the meds I am on. Still overall things are pretty good. Just needing some more help with paying for my medicine. My stomach med alone is $100 out of pocket a month b/c it's not FDA approved but it's the only thing that works and is prescribed by the doctor. Without that, I would be having severe stomach pains on a daily basis. So your help is greatly appreciated! Thanks!
May 02, 2014
Getting close to 5 years post transplant and doing well!
Nov 09, 2013
Lungs are still doing well! Lung function is great but still get junky a lot. They think it is probably from my sinus drainage going into my lungs. Still do daily breathing treatments along with...