Hi Everyone! Has been a very long year! Have been extremly busy with appointments and traveling back and forth to Cleveland Clininc! I am still waiting for my double lung transplant! I am currently still going every three months for testing to check on my lung functions! At this point they r continuing to deminish. But seem to be doing so at a slower rate! Due to the biological injections I am on weekly! The transplant team at Cleveland Clinic are monitoring my condition very closely, due to the fact the current meds I am taking can and will not be effective in fighting this condition at some point! And I will require immediate evaluation for transplant! So I am trying to remain positive and keep praying that I will receive my miracle! Mean while I am enjoying my children and watching them grow up! And I Thank God for every day I am given! And pray for my miracle and second chance at life!!
May 14, 2014
Just wanted to send out a short up date! First I want to Thank everyone for all your prayers, and donations! The last several months have been very busy. With many Dr appointments, test, and trips to Cleveland Clinic! I will be leaving in June to return to Cleveland Clinic for more testing. And a evaluation on how close I am to transplant! They have finally gotten all my meds in order, according to my condition and how it is affecting my breathing on a daily bases. I am using a inhaler now,along with taking 3 to 4 breathing treatments a day! On a weekly self injection, and the most important Oxygen. Many other drugs every day also!
I am still continuing to Fundraise! To help pay for the high cost of these medicines. And the traveling back and forth to Cleveland! I usually stay 2 to 3 days at a time! When I do receive my gift of Life! The cost for transplant, and rejection medicine will be extremely high! And in order to be able to pay these cost, I am still fundraising with helphopelive! I am continuing on this amazing Journey, knowing God has it all in his hands! I am so blessed for each day!! And I will never give up on my MIRACLE!! --Amy
Nov 27, 2013
November 27, 2013 The family of Amy Johnson want to wish all a Happy Thanksgiving. We thank all our friends and supporters for their kindness and donations. Amy, will be going back to Cleveland...
Jul 17, 2013
I am so blessed! I just want to say Thank You, to everyone for visiting my page, and reading my story! And Thank You for all your Prayers, and donations. They are so greatly appreciated! God Bless ...