It has been some time since our last update. Everything was pretty quiet for a long while, however, things have taken a big turn for Donnie recently. Let me start with the good news first. Donnie had a new procedure completed on Friday August 26th. They went into both his knees and actually burned the nerves apart so that he can now walk pain free for the first time in 25 years. This procedure last approximately 6-8 months then the doctors can go in and do it again. Only set back is that with his blood counts he needs to get blood products prior to this procedure. You don't know how happy we both are for him to be able to get up and walk the halls of the hospital without pain. Now the bad news: Due to Donnie's IGA NEUROPATHY (SP) his kidneys have taken a hit. He is now in need of both a liver and kidney transplant. I brought him into Hershey on August 19th due to him retaining fluid and just being so bloated and not being able to breathe. As time has gone by his kidneys have just gotten weaker by the day and have basically shut down. They are trying medications to get them restarted but as of today the doctors said that does not seem to be working. Our next step will be dialysis. That will be 3 times a week. As it stands he is off the transplant active list because he is over the 40 BMI cut off. We need to get this water weight off of him so we can move him back to the active side again so that he can get his liver and kidney transplant done. Please any help would be appreciated. LOVE YOU ALL DONNIE AND ANN
Jul 07, 2014
Big changes going on right now. As many of you know Donnie's knee has been bone on bone for years know and it has been getting worse and worse. He is seeing a new orthopedist that wanted to do a knee replacement being that Donnie is really having a difficult time walking. We spoke to the Transplant team and Dr. Riley said that if at this time the knee transplant would be done Donnie's chances of survival for 3 months would be less than 30%. It was very disheartining to Donnie to say the least that this could not be done but we will get thru this like everything else. Right now we have to be pro-active. we are putting a ramp on the deck out front. The orthopedist said it would not be long before donnie would be in a wheelchair due to the pain in the knee. I am trying my best to keep him as active as i can to keep his weight down as well as keep him going so that the wheelchair may be an option after the liver surgery. Please send prayers that Donnie gets this liver so that he can get his knee replaced. His liver is still functioning on the good side so that is a plus and a downfall but like i said before we will make it thru this and anything else that is thrown our way. Love you all. Ann and Donnie
May 23, 2014
Hi everyone. Hope all is well with you. Well are adventure is never ending. Donald as you know is in need of a knee replacement due to the accident back in 95. It is getting harder and harder...