It has been quite a spring and summer here at Hershey Med Center with Donnie. As of this past August/September Donnie is now in need of both a Liver and kidneys. His Kidneys stopped functioning and he needed to go thru 4 days of dialysis to allow his kidneys some rest before they restarted for him. We are back and forth with numerous stays at the Med Center this year again and have decided that with the fact that his MELD score does not seem to go above 30 and that they will not actively look for organs until it gets to at least 35, we may go down south to see if he can possibly get organs a little quicker. That means some fundraising so that we can stay in that area for a time while he waits for those organs and while he recovers from surgery and that they feel he can come back home to be followed up by the Dr.s here at Hershey. Right now we are making weekly trips to Hershey on Mondays for him to have blood work done and then every other week he gets fluid removed off of his stomach area as well. Also, at times he is going up for transfusions due to his low hemoglobin count, this low count makes it hard for him to breathe and makes him extremely tired all the time. I am just praying that we can get some good news from one of the hospitals that accepts his insurance that they will accept him as a patient and also hopefully will help with some financial aid for the procedure itself and that all we really would need to worry about is our living expenses and all the meds and stuff that go along with his transplant and well that is a lot. LOL. Oh by the way Donnie has found a way that he likes to scare me. He does not do well with anesthesia. Yes, he likes to stop breathing after having procedures that require regular anesthesia. Donnie had to have several teeth removed recently and well stopped breathing when they brought him back up to the room. Yes, I have never ever in my life seen a room at a hospital fill so quickly. I was shouting answers to the dr as to what blood products Donald had been given that day and to the procedure he just came back from and well he told me he was quite impressed with my performance. The rapid response team gave him some narcan and well that did not phase Donnie so they had the anesthesia team on the ready to stick a breathing tube down his throat. they were all set and ready when he decided to start coming around. they proceeded to transport him to the ICU that was up one floor and well he decided to quit breathing again so I was not allowed on his elevator and had to take the next one. Once he was all settled in the room he was fine again and well was discharged the very next day good as new just minus 7 teeth. I am happy to say he is no worse for wear and well he does not remember me doing the sternum rub and screaming at him and beating on his chest and telling him " That I swear to God if he dies on me I was going to go back into the room and beat him to death" LOL the Chaplin got a laugh out of that. So for closing, please if you have any ideas for a fundraiser please shoot them to me because like I said as soon as we have Dr. Krok in Hershey contact Vanderbuilt Hospital in TN. and if and when they accept Donald and we have to go for a general first appointment workup we will need to probably get things moving pretty quickly. Thanks everyone we love you all. Donnie and Ann
Aug 29, 2016
It has been some time since our last update. Everything was pretty quiet for a long while, however, things have taken a big turn for Donnie recently. Let me start with the good news first. Donnie had a new procedure completed on Friday August 26th. They went into both his knees and actually burned the nerves apart so that he can now walk pain free for the first time in 25 years. This procedure last approximately 6-8 months then the doctors can go in and do it again. Only set back is that with his blood counts he needs to get blood products prior to this procedure. You don't know how happy we both are for him to be able to get up and walk the halls of the hospital without pain. Now the bad news: Due to Donnie's IGA NEUROPATHY (SP) his kidneys have taken a hit. He is now in need of both a liver and kidney transplant. I brought him into Hershey on August 19th due to him retaining fluid and just being so bloated and not being able to breathe. As time has gone by his kidneys have just gotten weaker by the day and have basically shut down. They are trying medications to get them restarted but as of today the doctors said that does not seem to be working. Our next step will be dialysis. That will be 3 times a week. As it stands he is off the transplant active list because he is over the 40 BMI cut off. We need to get this water weight off of him so we can move him back to the active side again so that he can get his liver and kidney transplant done. Please any help would be appreciated. LOVE YOU ALL DONNIE AND ANN
Jul 07, 2014
Big changes going on right now. As many of you know Donnie's knee has been bone on bone for years know and it has been getting worse and worse. He is seeing a new orthopedist that wanted to do a...
May 23, 2014
Hi everyone. Hope all is well with you. Well are adventure is never ending. Donald as you know is in need of a knee replacement due to the accident back in 95. It is getting harder and harder...