It's been a long time! It has been a long time since we have updated Max's page! This past year has been a very busy year for us. Max has officially been off of the vent for an entire year! He still has the trach but we are hoping that maybe in the next 6 months they will be able to pull it. Max continues to have many doctors appointments, he sees multiple specialists that include, cardiology, neurology, gastroenterology, and urology, along with multiple visits to his pediatrician anytime he shows signs of being sick. He has weekly therapy visits both physical and speech and he has been working VERY hard, while Max cannot walk or talk yet he has learned a few words and has learned to scoot on his bottom, these are both things that the doctors never expected him to do because of the brain damage from the strokes, he continues to amaze his doctors!! Max became a big brother on 11/29/10 and it has made our family feel very complete, watching him with his baby brother is amazing! We recently had a scare with Max he spent the end of April and most of the month May in the hospital, he was diagnosed with interstirial pneumonia, which for him can be very dangerous since his immune system is compromised with all of the medicines he takes to prevent rejection. Thankfully Max pulled thru and has been doing great since he came home, he continues makes us smile and laugh and remind us just how blessed we are to have him here with us http://http://
Sep 12, 2010
Max's 1st Birthday Celebration!:>) What a day we had! Everything about it was perfect. Especially the fact that our miracle Max lit up the room!!! He was full of smiles and laughter! The room was filled with joy. To celebrate the fact that God brought our son thru this long hard journey....to have him survive and inspire each and every person he touched along the way....it was amazing! Thank you God! With much love and thanks
Erin, Rick, Emma, and Max:>)
Sep 11, 2010
Max 1 Year Old!! 9/11, the one year anniversary of the day our son Max's heart failed him. Today we will celebrate Max's 1st birthday, which was 9/1, with family and close friends. We will...
Mar 24, 2010
7 Months As we approach April 1st, when Max will turn 7 months old, we are still adjusting to life at home after 2 months. The most wonderful feeling IS having our family whole again, AT HOME!!!! ...
Feb 24, 2010
Max's Homecoming on Channel 2 News Because Max is the youngest patient to have been put on the Berlin heart, followed by a heart transplant, Channel 2 News, WSBTV, reported his story on December...
Feb 16, 2010
Back Home Again!:>) Today, being February 16th, we are heading out to Children's to bring Max back home with us!!:>) It was a short stay and hopefully his last for quite some time! We have yet to...
Feb 14, 2010
Visit back to Egleston!:) Erin, Rick, Emma, and Max
Feb 09, 2010
Max is HOME!!!!!!!!!!!:>):>):>) We have waited SOOOOO long!!!!! After 5 LONG months we are SOOOOOOO very happy to report that Max is FINALLY at home with us!!!! We are soooo very grateful for all...
Jan 30, 2010
Light at the end of the tunnel!!!!! We are thrilled to report, Max is sooooo close to coming home!!!!!! A discharge date of February 9th was given, we may not meet this date but it will be...
Jan 11, 2010
Positive update! 4 months ago today, on September 11th, Max entered Children's Hospital. What a journey it has been. We are happy to report we have begun the beginning of the end!! Today, January...
Jan 05, 2010
Update 1/5/2010 We cannot believe that we are into a New Year and our sweet baby Max is still residing at Children's!!! He is now 4 months old!!! Max has been struggling with what they call death...
Dec 22, 2009
Success/December 22nd Max had succesful surgery today. He had a tracheostomy and a gastrostomy feeding tube inserted into his stomach. It was wonderful to have him come back from surgery and we...
Dec 17, 2009
Update 12/16/09 Max has continued to struggle with the process of being weaned off the respirator. Well, with good reason. It was discovered that the left side of his diaphragm is not functioning...
Dec 09, 2009
Three months old Our Mighty Max turned three months old on December 1st. It has been a month since he received his new heart. We wish we could report that he is home with us, but that is not the...