Great news - our donor is officially out of ICU. He has moved to a rehabilitation center where he will receive physical therapy, occupational therapy, and speech therapy (for swallowing). We are SO grateful for his continued progress. Being in a rehabilitation center will no doubt be less stressful for him and his family. We hope the improved environment will allow him to make progress quickly.
Jul 25, 2017
Post op day 34 - It has been one month since we Cuong left the hospital - God is good! Our donor is still in the hospital, but he is off the respirator and breathing on his own. We are all very relieved his health is making positive progress. Thank you to everyone who has been praying with us on this issue.
Cuong still has the bulb drain in his abdomen. It is unclear how long he will continue to have it. Dr. Potter said fluid collection does happen in many patients. After a transplant surgery, the lymphatic system being disrupted sometimes does not move and absorb lymphatic fluid appropriately. Unfortunately, fluid collection may happen again after the drain is removed - actually quite likely at an ~60% chance. If it does, then the surgeon will go in laparoscopically to deal with the issue. We'll cross that bridge when we get there.
The rescheduled stent removal is this Thursday. It is an in-office procedure, so we do not expect any complications. On Monday, Cuong will be admitted to ETMC for an outpatient surgery to remove his peritoneal dialysis catheter. This is a big deal as the new kidney is performing well enough that Cuong will not have to go back on dialysis (at least for now, and as long as the kidney keeps working). We'll arrive at the hospital Monday morning and be there most of the day.
Overall, Cuong is feeling better. He is eating well. Labs come back each week with mostly positive results, just a few tweaks in medicine here and there. He is still completing physical therapy and getting some of his strength back each week.
Jul 19, 2017
Post op day 28 - Our donor is still in the ICU unit of the hospital. However, he is improving little by little each day. The doctors have decreased his use of the respirator to only evenings...
Jul 13, 2017
Post op day 22 - Although our donor made it through ileus complications, he is unfortunately still in the hospital having contracted pneumonia while in the hospital. He has been in critical...
Jul 07, 2017
Where did they put your new kidney?
This is a question we've been asked frequently. I am not a medical professional, so my explanation is somewhat simple. I encourage you to google "kidney...
Jul 06, 2017
We heard from the donor's family and he is doing well after having surgery for ileus. He developed adhesions from a previous surgery which were caused his bowl to turn preventing him from digesting...
Jul 05, 2017
Post-op day 14 - Today we drove to Tyler to see the nephrologist. While there, we met our new nephrology nurse, Cindy, who has been helping transplant patients for over 14 years. She explained in...
Jul 04, 2017
Post-op day 13 - Cuong has been to Tyler three times in the past 13 days to see the surgeon, Dr. Potter, since leaving the hospital. With each visit, lab work is completed first at East Texas...
Jun 29, 2017
Post-op day 7 - Cuong has been home for 2 days. He is happy to be out of the hospital, but the transition home has been challenging. Cuong is experiencing all of the normal post-surgery challenges...
Jun 27, 2017
Post-op day 5 - We are home! The day started on a positive note with Cuong getting a few hours of sleep and eating a good breakfast. The nurses removed his IV and transitioned him to oral pain...
Jun 25, 2017
Post-op day 4 was just as difficult as day 3. Cuong, unfortunately, was unable to get a good night's rest. He has an amazing day nurse who was kind enough to minimize his disturbances to allow him...
Jun 24, 2017
Post-op day 3 was a difficult one. Cuong is no longer restricted to bed rest, but it is painful to move around. Today, the nurses reduced his dosage of pain medications which may have also played a...
Jun 23, 2017
Cuong is recovering well. Today he was able to get out of bed and take a brief walk around the hospital wing. Being much more alert, he was also able to sit up for a while to read, watch TV, and...
Jun 22, 2017
Today Cuong was alert and able to talk with the nurses. Our surgeon, Dr. Steven Potter, visited with him this morning and was happy with the progress that he has made. It seems the new kidney is...
Jun 22, 2017
What a crazy 24 hours we have had in Tyler, TX. All I can say is God is GOOD. Surgery went well for both the donor and Cuong. Surgery began around 2 pm and was completed by 5 pm. Cuong spent the...
Jun 03, 2017
We have a living donor! Cuong is scheduled for surgery on June 21 at East Texas Medical Center in Tyler, TX. Out of respect for their privacy, we will not share the name of the donor. However, we...