Over the past month things have been positive and steady for Cuong. He continues to have doctor's visits each week with Dr. Potter. The incision site for his kidney transplant has healed completely. The incision site where his peritoneal dialysis catheter is still healing. We never found out a concrete answer on why Cuong has extra fluid in his abdominal cavity, but there are no signs at this point that the fluid is excessive. Having been on dialysis for so long it is possible he had the extra fluid before the transplant but it was undetectable. The nephrologists are pleased with Cuong's progress, so they have decreased appointments with the kidney doctor's to once per month. Cuong has two main issues at this point: 1) He needs to gain weight. Cuong was always a very slim person, so it was no surprise that post-transplant he returned to his pre-dialysis weight. However, he lost more weight that anticipated. Cuong is eating a high protein, high calorie diet to try to pack on additional pounds. Three weeks of this diet he has yet to gain any weight, but he has not lost any weight either. 2) Cuong will be eligible to go back to work in 2 weeks. Please pray with us that he will be physically and mentally strong enough to return to his normal duties.
Please continue to reach out and contact Cuong whenever you think of him. Support from friends and family has played an important role in his recovery.
Aug 13, 2017
We had a positive and encouraging doctor's appointment on Friday with Dr. Potter. Cuong has had additional fluid build-up in his abdominal cavity. The cause is unknown and after several tests specifically looking at the function of the liver, all test results came back negative and showing normal liver function. In another 3-4 weeks, a CT scan will be completed to see if there is still fluid in the abdominal cavity. Dr. Potter hopes the issue will resolve itself. As for right now, there is nothing else we can do.
Cuong's new kidney continues to function well. In another 3 weeks, Cuong will no longer have a weight restriction and can begin working towards returning to work perhaps at the end of September. A lot can happen in the next four weeks, so his return to work is not definite. However, we hope his body will continue to heal and strengthen.
On Saturday, I (Uyen) visited with Cuong's donor. He unfortunately is still in the hospital in specialty rehab. His health has significantly improved over the past 3 weeks. However, after dealing with pneumonia, he is not fully back to normal. He had been on a respirator for quite some time and completely unable to eat, so he is rather weak. Each day he completes some physical therapy and works with a speech pathologist to regain the ability to swallow. Once he passes a swallow test, he can move from a feeding tube, to soft foods, and eventually whole foods. Doctor's anticipate that once he is eating normally, he will regain physical strength and kidney function.
We ask that you pray for our donor as he has sacrificed so much for our family. We hope he will be able to eat again soon as well as go home because no one likes being in the hospital for an extended time.
Aug 09, 2017
On Friday, Cuong had his bulb drain removed. Dr. Potter stated that there is some fluid in the lymphocele. However, the size of the overall lymphocele has decreased significantly. At this point, it...
Aug 02, 2017
Dr. Potter removed Cuong's peritoneal dialysis catheter from his abdomen on Monday. It was a successful surgery. However, recovery has been quite painful. The procedure was laparoscopic, so the...
Jul 28, 2017
Post-op day 27 -
On Tuesday, the nephrologist discontinued 1 of the 3 high blood pressure medications Cuong has been taking. He has not had a significant blood pressure spike since Tuesday, so...
Jul 26, 2017
Great news - our donor is officially out of ICU. He has moved to a rehabilitation center where he will receive physical therapy, occupational therapy, and speech therapy (for swallowing). We are SO...
Jul 25, 2017
Post op day 34 - It has been one month since we Cuong left the hospital - God is good! Our donor is still in the hospital, but he is off the respirator and breathing on his own. We are all very...
Jul 19, 2017
Post op day 28 - Our donor is still in the ICU unit of the hospital. However, he is improving little by little each day. The doctors have decreased his use of the respirator to only evenings...
Jul 13, 2017
Post op day 22 - Although our donor made it through ileus complications, he is unfortunately still in the hospital having contracted pneumonia while in the hospital. He has been in critical...
Jul 07, 2017
Where did they put your new kidney?
This is a question we've been asked frequently. I am not a medical professional, so my explanation is somewhat simple. I encourage you to google "kidney...
Jul 06, 2017
We heard from the donor's family and he is doing well after having surgery for ileus. He developed adhesions from a previous surgery which were caused his bowl to turn preventing him from digesting...
Jul 05, 2017
Post-op day 14 - Today we drove to Tyler to see the nephrologist. While there, we met our new nephrology nurse, Cindy, who has been helping transplant patients for over 14 years. She explained in...
Jul 04, 2017
Post-op day 13 - Cuong has been to Tyler three times in the past 13 days to see the surgeon, Dr. Potter, since leaving the hospital. With each visit, lab work is completed first at East Texas...
Jun 29, 2017
Post-op day 7 - Cuong has been home for 2 days. He is happy to be out of the hospital, but the transition home has been challenging. Cuong is experiencing all of the normal post-surgery challenges...
Jun 27, 2017
Post-op day 5 - We are home! The day started on a positive note with Cuong getting a few hours of sleep and eating a good breakfast. The nurses removed his IV and transitioned him to oral pain...
Jun 25, 2017
Post-op day 4 was just as difficult as day 3. Cuong, unfortunately, was unable to get a good night's rest. He has an amazing day nurse who was kind enough to minimize his disturbances to allow him...
Jun 24, 2017
Post-op day 3 was a difficult one. Cuong is no longer restricted to bed rest, but it is painful to move around. Today, the nurses reduced his dosage of pain medications which may have also played a...
Jun 23, 2017
Cuong is recovering well. Today he was able to get out of bed and take a brief walk around the hospital wing. Being much more alert, he was also able to sit up for a while to read, watch TV, and...
Jun 22, 2017
Today Cuong was alert and able to talk with the nurses. Our surgeon, Dr. Steven Potter, visited with him this morning and was happy with the progress that he has made. It seems the new kidney is...
Jun 22, 2017
What a crazy 24 hours we have had in Tyler, TX. All I can say is God is GOOD. Surgery went well for both the donor and Cuong. Surgery began around 2 pm and was completed by 5 pm. Cuong spent the...
Jun 03, 2017
We have a living donor! Cuong is scheduled for surgery on June 21 at East Texas Medical Center in Tyler, TX. Out of respect for their privacy, we will not share the name of the donor. However, we...