I celebrated my 5th year anniversary of my transplant. A big milestone for sure. It also brought back a lot of memories - good and not so good.
I feel really blessed to be alive. However, it seems to take a tremendous amount of effort and the support of my loved ones.
My medication regimen is very hard on the body, and increasingly, many of my problems are fallout from that regimen and not the transplant itself.
I want to thank those of you who still visit, still care, and still donate. The expenses continue, and it helps to have your financial support to help make ends meet. Even with insurance, my part of the pharmacy bills often exceed $800 a month. My most expensive pharmacy month was $1736. It would have been a lot worse without this fund to fall back on.
May 27, 2016
Dear Friends and Visitors,
Thank you for stopping by. I must save with some amazement that I am still alive. There have been so many close calls and near death experiences, that I am almost losing count. But, my tasks here must not be done for I continue to come back.
I imagine that I speak for many who survivors here at HHL (and elsewhere), when I say that prolonged campaigns are very difficult. We live in a society that does not really understand the realities of living with a transplant, or even having a permanent, severe health condition. However, this truism is particularly apt for transplant recipients.
It is my experience, that people assume that once one has a transplant one is "healed;" everything returns to "normal" and one just goes on with one's life. Little do they know that while you have gone through a life saving procedure, that you have now stepped into the world of an ongoing, severe, medical condition.
I had my transplant in June 2011, and I am rapidly approaching my 5th year anniversary. This is a remarkable accomplishment with a lung transplant, and I am deeply blessed to be here. However, I have spent close to 1.5 years of that 5 years in the hospital - not counting the time recovering from the actual surgery. My medical expenses have been exceeding $25,000 a year. However, donations have been at a trickle since shortly after the surgery.
I do not share this to get anyone's sympathy, but I do hope that it makes people think a bit about the people they know who are fighting with serious chronic health issues - for that is what all of us here at HHL have.
Thank you and may the Light shine on you and yours.
Jul 30, 2015
I am still here and still fighting. I have found that living with a transplant is almost a full time job. There are the periodic hospitalizations for a range of things - some directly transplant...
Sep 07, 2014
Well life with a transplant has been a true adventure for me. I've been sick alot (rejection and pneumonia) and had many issues with my drug regiment. Unfortunately, I am started having some...