It has been 8months since I received the wonderful gift of life, my rockstar heart. Life couldn't be better. Im back to work and back to the independent person I always was before heart disease sucked the life out of me. I have more energy than I have had in years and i've never been happier!. I have gotten this far, only because of the wonderful donor family who blessed me with this heart, and the incredible care I received from Thomas Jefferson Hospital, and the support of all my family and friends. Ive been able to keep this rockstar heart happy and healthy b/c of everyone's generosity and kindness. There are not enough words to thank everyone enough!!
Apr 15, 2014
44 days with my beautiful new heart and again negative rejection from yesterday's heart biopsy!!! This heart is a rock star!!! Except for the GI distress which I have had and is getting worse everyday, and the shakes, everything is great!! Starting in the am I'll b having med changes and hopefully that will resolve the med side effects and my steroid dose is decreasing also. I'm feeling almost completely like myself again, Minus the chest pain and profound tiredness! The new and improved me! Starting heart biopsy's every other wk x 6 wks. Sweet!! Starting cardiac rehab 3x wk x6 wks, can't wait!! I feel so happy, but everyday I think of my donor and his family. I hope and pray that their pain is bearable. Please continue to pray for them. I'm sure they will need it for a long time to come. Give me a call and we should try to get together bc I'm ready to get out and about and I miss everyone!!! Hope everyone is doing great!! Xoxo
Apr 03, 2014
First walk in months with the furry kids!!! We all loved it!! Great day. I went to target and post office also. Feels so good to be out and about!! Stomach bug 75% resolved. I'm wondering if my...
Mar 30, 2014
I received a call 4 wks ago today. We have a heart!!! I knew at that moment my life and my children's lives were about to change forever. I hoped that without ever being anything, but positive I...
Mar 14, 2014
Hi everybody, yesterday was 10 days since I received my new heart! Daily improvement, limited pain, no narcotics for days, increased movement. Really learning to pace, and adjust to my steroid...
Mar 04, 2014
GOOD NEWS UPDATE! The new heart is working like a champ. Leslie is in a lot of pain but her recovery is going as expected!! Thanks for the positive thoughts and prayers!
Mar 04, 2014
March 2, 2014. Heart day is finally here!!!! I don't feel like I'm going in there alone but I feel you all pulling n praying for me. I couldn't have made it thru these 93 days without ur visits,...
Feb 17, 2014
80 days today!!! I never thought I'd be saying that. The things I wished for 80 days ago. Sleep in bed without being squished by dogs, eat without begging dogs, read a book without being...
Feb 07, 2014
70 days here and counting. Every night I fall asleep and I think tonight is the night, their going to wake me and tell me they have a new heart for me, and then I awaken in the am and I'm like...
Jan 28, 2014
Wow, day 60! Despite all the love and support I have, this is at times very difficult. I miss simple things so much, sleeping in my own bed, walking thru my house, opening my frig and eating and...
Jan 18, 2014
Today marks 50 days waiting for my new heart. Honestly I thought it would have happened by now and I'm not sure why I did. I do know I would be going out of my mind if it wasn't for my wonderful,...
Jan 08, 2014
Jan 08, 2014 40 days I've been in the hospital today. I can't believe I haven't lost my mind. I remain focused on my goal of getting a new beautiful heart and in positive spirits! I have been able...