Well, things have kind of been at a stand still lately. We have been working on building Bob back up a little. There are concerns that he is not strong enough to undergo surgery. So, he is not yet back on the transplant list. Next week we have several appointments. One of which is with a surgical dentist to see what can be done about some issues in his mouth. One more thing that is holding back the transplant.
As always, we thank you for your support through all of this. With all of the complications, it has been very difficult to remain positive. Knowing that we have your support and prayers has been more precious to us than you know.
I am hoping to have a new fundraiser set up soon. It has been difficult the past several months fighting to get benefits, insurance issues and so many other issues that are a part of disability. Stress has been high and time has been little.
I hope you are all doing well!!! Drop us a line or stop by and visit. (Just let us know so that I can crate my crazy dog first) :) His bark sounds mean but he is really a 90 pound lap dog....... Love to you all!! xoxo
Nov 30, 2015
Hi everyone!!! I do hope you all had a wonderful Thanksgiving!! We actually got to have our Thanksgiving at home this year instead of the hospital. It was a good day.
I would like you all to know how very thankful we are for your support with this campaign. We are living on very limited income and have had many issues with insurance and benefits. Your support has helped us so much both financially and with peace of mind. The stresses of a long term critical illness are very extreme. Some of the limitations put on the household because of benefits kind of make us feel like we stuck between a rock and hard place.
So please don't ever think that your support in all of this is not important. You are helping to keep us together as a family and letting us know that we are not alone. We love you all for that.
Tomorrow (December 1st) is Giving Tuesday. Now in its fourth year, #GivingTuesday is a day of giving observed on the Tuesday following Thanksgiving and the widely recognized shopping events Black Friday and Cyber Monday. #GivingTuesday focuses on charitable giving and on Tuesday, December 1, there will be no credit card fees attached to donations to my HelpHOPELive Campaign; 100% of your donation will go to Bob's fundraising campaign. Please consider making a donation on December 1.
We could in no way get through this without you. We have a very long road to go. Bob has not been relisted as active on the transplant list yet. As we wait, we become more and more anxious and concerned. Your prayers and support get us through. Thank you all again for all you do!!!! xoxo
Jun 09, 2015
It has been a while since I have been able to update. I apologize for that. Life has been a bit crazy........
April 24th Bob got the call that he was next on the list to get a heart. April...
Mar 03, 2015
We have added a new fund raiser!!! We are raffling off 2 Pittsburgh Penguin tickets for $5.00.
All tickets must be sold by March 19th and the winner will be based on the PA Daily Number Drawing...
Jan 23, 2015
Bob has been home since Tuesday. Occupational Therapy started yesterday, physical therapy and speech therapy should start this weekend and next week. It has been 3 months since his stroke and he...
Dec 24, 2014
We would like to wish you all a very Merry Christmas!!!
Bob will remain in the hospital, his projected release date is January 20th. This is only the projected date. We will keep you...
Dec 16, 2014
Just added 20 or so pics of the Spaghetti Dinner........just a little behind.......:)
Dec 16, 2014
Help Bob Be Bob Again!
Dear Family and Friends,
As most of you already know, Bob has been courageously battling congestive heart failure since 2008 and over the years has endured many...
Dec 02, 2014
It's been a pretty eventful month. Bob has been in the hospital since Halloween. He was admitted when he went into VTACH (sp) and then had a stroke that night. He has been in the CTICU since...
Oct 13, 2014
Well as you all may know, Bob has been back in the hospital for a week now. I haven't had much time to update........
He has had some internal bleeding going on somewhere which in turn affected...
Sep 13, 2014
Can;t wait to see everyone at our spaghetti dinner today!!
Love you all!!
Sep 11, 2014
Our Spaghetti Dinner is just a couple of days away now. The planning has gone well because of the many friends and family that have helped.
Really looking forward to seeing everyone!!!! ...
Sep 02, 2014
There has been a lot of improvement since the last update. Bob is free of the chest tubes and is now up to 8 walks around the floor a day. It has been 18 days in the hospital so far. He is...
Aug 27, 2014
Bob continues to improve daily. They couldn't take out the chest tube again today but he still got two long walks in and other physical therapy. He seemed to have a bit more energy today and fluids...
Aug 26, 2014
Please let me know if you want tickets to the spaghetti dinner!!! I will put them in an envelope and have them at the door for you. If you want them before hand we can work that out...
Aug 25, 2014
Don't forget to scroll down and check out Bob's Photo Albums.
Aug 25, 2014
Bob is doing okay. He is holding tons of fluids and they need to work diligently to get rid of them. He is walking some but is very tired.
Thanks for prayers.
Aug 23, 2014
Bob was moved back to his regular floor today. Chest tubes come out tomorrow. He exhausted, but, everything looks pretty good.
I have to say that Pittsburgh is an awesome place to live. I am...
Aug 22, 2014
They had Bob up and moving around quite a bit. He was exhausted when we left. Temp up a bit. Doing blood cultures just to check for infection. May move to his regular floor this weekend.
Aug 21, 2014
Today was a good day for Bob. The breathing tube came out, numbers look good and I'm amazed, but, he is up sitting in a chair!!! I'm not sure but I think maybe they infused him with Superman's...
Aug 21, 2014
I have tickets available now for the Spaghetti Dinner on September 13th. If you would like tickets or are able to help us sell some, please email me at firstname.lastname@example.org.
Please see the...
Aug 20, 2014
I thank you all for asking how I'm doing and your concern. Exhausted would be the closest answer but also grateful. My kids have been incredible!!!!!! You all have been such a great support system...
Aug 20, 2014
It was an incredibly long and difficult day for Bob. After 8 or so hours on the operating table, he has a new pump. The surgeon said this was the most difficult surgery he has done. Because this is...
Aug 19, 2014
Bob will be undergoing open heart surgery again tomorrow morning. His pump will be replaced.
We so appreciate your prayers, friendship and all of the support you have all given us.
Aug 18, 2014
Bob is back on his normal floor at Presby. Numbers are returning to "normal". Until all numbers are in the therapeutic range he will need to stay there.
But, he is out of the woods as far as...
Aug 15, 2014
Today was a little difficult. Bob was put into CTICU so they could give him clot medication. It was risky but necessary. After a short time his numbers on his pump returned to normal. Now he...
Aug 14, 2014
We tried to have a much needed little vacation.......but, we had to cut it short. Bob was life flighted from UPMC Northwest to Presby last night. He apparently has a blood clot which has...
Aug 08, 2014
We had a day of follow up doctor appointments.......everything checked out okay.
Thanks so much for prayers!!
Aug 07, 2014
If you scroll down to the fundraising section and click on Spaghetti Dinner, you will see a flyer that gives more detail about our fundraiser.
My contact info is on there if you have any...
Aug 05, 2014
We will be having a Spaghetti Dinner Fundraiser to benefit HelpHopeLive in honor of Bob to help with his transplant expenses. The dinner will be September 13th. More details to follow. If you are...
Jul 31, 2014
And.....the patient is home!!
Jul 30, 2014
Surgery went well today. Everything appears to be okay now. Thank you all for prayers and support!!
Jul 29, 2014
It's been a while since my last update.
Bob had minor surgery last Monday to replace the battery in his ICD. Today, 8 days later, his incision began to bleed. So, tomorrow they will need to...
Jun 27, 2014
It's been a little crazy lately so I haven't been able to update as much as I would like. I am working on fundraising activities behind the scenes and HOPEFULLY will have some things in gear very...
May 29, 2014
Bob finally came home on Tuesday. Trying to get back to a normal routine.
I will be using this page to update you all on general things and Fund Raising Events, etc. For all other updates on...
May 22, 2014
Update on Bob.......kidney function has just about returned to normal. Procedure today showed all good numbers on his LVAD. Has to get his blood INR levels back up and he can come home. That may...
May 21, 2014
We have had a bit of a setback. Bob is back in the hospital. Apparently his diuretics have worked too well and he has become dehydrated and is having some kidney function issues. ...
Apr 28, 2014
Many thanks to all of you who supported our fundraiser with Mandy's Pizza & More Pittsburgh today!!!! Many thanks to Steve Negri and his awesome employees for all of their hard work!!!!!! Words...
Apr 23, 2014
Just updated our Fundraising Events Section!!!!!
Just click on the event title and you will be able to view the flyer!!!
We are very excited and hope that you will join us in enjoying some...
Apr 09, 2014
We have a Face Book page set up as a community of support for Bob. We would for you to post pictures, stories, ask questions, etc. Bob needs your emotional support and encouragement!!! See you...
Apr 01, 2014
Beginning to work on getting some fundraising events going........stay tuned!!!!!!
Mar 18, 2014
Bob was put back on the active transplant list today as a 1B. 1A is top priority.
He is working hard at rehab and also went into town to work in the office today.
We will have events in the...
Mar 17, 2014
Last week when Bob went in for Clinic, they asked him to talk to a patient who needed to get an LVAD. This patient was in turmoil as he was afraid to do it, but, the alternative was grim. After...
Mar 12, 2014
Bob had clinic today which is his once a month physical, device check, lab work, etc.
He was cleared to be able to drive, walk the treadmill and track and work some outside of the house. This...
Mar 05, 2014
As we start this fundraising campaign, we would like to thank you for your support.
The uncertainty of the past several months and what lies ahead is a bit overwhelming. However, we know that...