Not a lot to report, other than I am now a Hemodialysis patient only. My PD tube was removed at the end of March. Then I had to have emergency surgery on my Graph as it clotted unexpectedly. That's done, and I have had some 20+ treatments so far. I am on the Tues Thurs Sat rotation. Fitting in other appointments as I can. One good thing my new dry weight is now 199lbs. Before Hemo started I weighed in at 233. So pulling nearly 35lbs off permanently sure makes life easier. We may push for a bit more slowly. As I have yet to cramp in the chair. My chair time is at 4 hrs 30 min per session though. Still getting my numbers under control. But while this side of the treatment started sooner than predicted. I hope to be using an artificial kidney within 3 years. So hopefully my Dialysis time will go by very quickly.
Please feel free to ask me anything at any time. And thank you for your continued support.
Jun 24, 2016
Just more of the same for this update. Other than to say I feel 1000% better since I was in the hospital. So it encourages me to not give up. Though my strategy may change, I think my better bet is to try for the artificial kidney that should be available within 2 years. I know how I react to some of the drugs. But the cost of those drugs in combination to the side effects leads me to believe I would be better off with artificial, even if it is an experiment. Still unsure if I want to try for the Pancreas. Now that my drugs are realigned for the stomach issues, if I can avoid anti rejection drugs altogether I may elect to just go for the Artificial Kidney.
Apr 27, 2016
Starting to feel better again. Not getting sick daily. Did some lawn work now awaiting a tune up to get done on the Mower.
Storm was impressive last night but mostly was wind and lightning. We...
Apr 20, 2016
Well March was a bad month. I was in the hospital 4 times with severe Vomiting lasting almost 5 weeks. They ended up removing my Gall-Bladder. And I was given a diagnosis of Gastro-Paresis...
Oct 04, 2015
Had another setback last week. I had my Hemoglobin drop rapidly, so I had to have a blood transfusion. Feel a bit better now. So they re-tested me. And my numbers basically improved across all...
May 28, 2015
Making a slow recovery from My hospital stay at the end of April/Beginning of May. Had a friend come in from a few states over to help me out. Made a world of difference. It was a belly infection...
Jan 28, 2015
Well we are almost at our target for starting the testing. As soon as I know how well or poorlyu its going we will start looking at doing more. I have 1 offer I already accepted from Family friends...
Dec 05, 2014
Going to really push the last few weeks of 2014 for donations. Hoping I can talk a business owner in Alaska or two to consider having a spaghetti feed or similar? Ideas are welcome. Any help is...
Nov 23, 2014
Would like to be able to start the testing in early 2015. So we need to really find some fundraising opportunities between now and then. Please remember all donations are tax deductible. So if...
Oct 11, 2014
I want to thank those of you donating part of your Alaska Dividend check. It is much appreciated. I sure miss getting mine since moving out of state for my medical treatments. Relatives in Alaska...
Aug 13, 2014
Fliers & Business cards are now going out and I can send you copies or pdf files to download yourself. For any of you who asked about helping with my charity. I have relatives in Alaska hitting...
Jul 20, 2014
We seem to be stalled on donations right now. I hate to even ask one friend let alone stranger for help. But I do believe I have more to offer this world. The flat bottom line is I don't have much...
Jul 06, 2014
Well still slow goings here, However we have put fliers out now and they are getting distributed in Alaska. I apologize for the delay. Just still battling a foot issue, which has me in bed most of...
May 25, 2014
Happy Memorial Day/Weekend
May 01, 2014
Well since Easter we have raised nearly 1500. So we are on our way to getting testing paid for. That number is though $10,0000. So Now is where I ask for ideas, and or help in setting up events. We...
Apr 20, 2014
So officially announced the creation of the charity drive on social media. Already getting positive responses. Hopefully it translates to donations.....
Apr 08, 2014
As we are just getting started, it may take a few days to iron out any bugs. Any with questions you can call their number or talk to me.
Many of you have asked about passing the word on at...
Apr 08, 2014
I know donations can be a hard thing these days, if you know me at all you know for me to ask for help is sort of rare. I hate being on disability or having to use food stamps. But the only way I...