Sorry I haven't kept you guys posted this past week I had my infusion for IVIG (donated human anti-bodies) and that went off on the last day I had a reaction to the steroid given with the IVIG. I got hives and felt really high luckily I didn't have to use my shock kit or EPI Pen. I just took more Benadryl. This past Friday I had Speech Therapy. Aaron, the speech therapist, is making me feel more confident I can manage my short term memory loss. So it was a bit comforting to hear. On Saturday I went to a place called the "Garage" I was a bit hesitant to go based on the name lol. However, one of my favorite local bands was playing so I think I needed the positive energy after such a trying week.
Jul 05, 2014
I had therapy at rehab on my elbows and forearms the day before yesterday. Paige, my OT, put steroid patches on my inner elbows. The patches have steroids that help relieve the pain and strengthen the elbows. Although I know it's helping, I worry because our visits are limited. 4th of July was ok but I missed most the fireworks. My family bbqed and as always my mom out-did herself the food was delicious. :-)
Jul 02, 2014
Today I had a speech therapy eval for my short term memory loss. This was caused by the lesions in my brain from the second attack I had in August 2012. The therapist, Aaron gave me a series of...
Jun 29, 2014
I hope I get some therapy for my elbows this week it's been a daunting task to try and get on the same schedule as my OT and she is leaving soon for a month so I was told she had some replacements...
Jun 29, 2014
So I got back from UCLA on Friday. I saw my neurologist and her nurse practitioner. Then the infectious disease Doctor because I have been feeling so crappy that we thought I might have blood...
Jun 22, 2014
Yesterday I didn't feel well but when a random person donated to me it cheered me up. It made me realize that people can still be human and have empathy for others. :-)
Jun 21, 2014
Today at OT my OT Paige put the electrode looking patches on filled with dexamethazone (some type of dermal steroid) and hooked them up to a machine on the inner part of my elbows. Now I know I...