new update went yesterday for a EKG and Echo on Tuesday July 7 will go and visit a cardiac doctor, it looks like my pulmonary hypertension is progressing
Jun 28, 2015
it had been almost 7 month I had been listed. Well had been call 3 times but no surgery, now I am developing pulmonary hypertension even with the medication it will not stop. Using more oxygen but hope is up.
Dec 04, 2014
it is official I am listed for double lung transplant
Nov 22, 2014
well I am aproved by the lung transplant team this coming up Monday november 24 I will have the sniff test plus surgeon appointment plus last details for to be listed with God will those lungs well...
Nov 07, 2014
new update my numbers are ready to add me to the transplant list, my Fvc are 44 my dlco are 22 and my oxygen level when I am walking goes to 82 however in rest I can still use 2 litters
Oct 26, 2014
well went to NIH on October 19 into the 24 , found out that my lungs capacity went down from 51 on July to 44 at this moment . I had been notice the changes but I know they need to happen, lord...
Oct 15, 2014
Still slow changes but had notice the tired I get when I am walking. Going to do the yearly transplant upgrade testing.
Sep 08, 2014
today is cool at NYC however, I am so tired. Yesterday did a mile walk got home and the oxygen level went to 83 with 3 liters of oxygen. I got home took a shower and went to take a long nape.on...
Aug 31, 2014
today it is very humid at New York I went to shop some things for the week I only walk four blocks honestly I got back home with out breath
Aug 26, 2014
had been noticing changes little by little now when I go walking or try to do some cleaning or even washing the dishes I need to put the oxygen at 3 liters. Is ok I know this will happen needs to...
Aug 11, 2014
yesterday I walk a mile even that my oxygen level went down to 82 and had to rest a little to continue but as the lung transplant sabido need to keep moving stay strong.
Aug 07, 2014
yesterday went a all day appointment PFT my FVC is at 51% also my DLCO is at 24% , did the 6 minute walk with 3 litters of oxygen and my number went from 96 to 86 , my echocardiogram show some...
Jul 28, 2014
on the 6 of august I have a long day PFT test 6 minutes walk echocardiogram and pulmonologist I will post the results. Thanks God even that today I am very tired. But continue moving.
Jul 14, 2014
into to now I been noticing changes slowly my breathing is more difficult, love to walk but I need to use the oxygen between 3 to 4 litters but at rest I am between 2 to 3. Still strong, faith and...
Jul 11, 2014
Today I wake up with pain in the back even I went for a small walk. I got back home very short of breath.
Jul 06, 2014
Today I had walk two hours with my husband it is true that neede to rest 3 times but as the lung transplant doctor said need to keep active. Notice that I am slowing little buy little but however...
Jul 03, 2014
Yesterday went to the lung transplant center for a follow up, Catherine doctor are watching me very closely for many reasons I can have a drastic change but into now I still stable doing what...
Jul 01, 2014
Tomorrow is a follow up at the lung transplant center at Columbia prevesterian hospital at 168 street New York NY. I been up to now stable but my PFT slowly going down those this is a good thing...
Jun 24, 2014
I am mother of two adult sons, I have a rare diseases call Hermansky - Pudlak Sydrome better know as HPS , this diseases had been found in many countries but is most people that has it are from...