Praying the creatinine has gone down and that is why I haven't heard from my doctor. They have never seen such a problem with edema which is discouraging to say the least. Eric says they probably don't usually put almost half a person's weight worth of fluid on a patient to keep the pancreas flushed and prevent clotting. 50 lbs of fluid on a 115 lb female is a lot different than 50 lbs on a 200+ lb male. I have gone back up 10 lbs in fluid since they cut my diuretics, and they said it probably shocked the kidney into holding on to sodium. At least I know it is fluid since I can see it in my face, arms, hand, and legs, not to mention the already bloated tummy being full again. If this part could pass I would feel so much better! Patience, once again, and once again not easy for a type A personality to handle real well. At least they have approved a trip to Hermiston next Friday for the Lewiston Bengal football game, and then hopefully home October 1 or 2. This has been quite the journey and I thank God every day for this gift and for the donations made to my HelpHOPELive fundraising campaign. I do not know what we would have done without it!!!!! Thank you ALL!
Sep 02, 2014
Still have 25 extra pounds of edema on board, but after my ultrasound of the organs this afternoon it shows that is all it is :) I heard the blood flow through both the kidney and the pancreas and they are both clear of clots and narrowing of the vessels with strong blood flow ;) This means I will not need to be tapped to drain what they thought might be lymphatic fluid. They did up my diuretics back up to 80mg morning and night so hopefully that speeds up the process!
I am completely off the pain meds now, so that is a huge relief...I don't like asking them! My Tacrolimus has been increased, but the prednisone dosage is down to 10 mg daily, still praying they back me down to 5 mg of that one soon.
Aug 21, 2014
I cannot even begin to thank everyone for their continued prayers, Facebook messages, emails, cards, texts, and the financial gifts that have been made to my campaign. It all means the world to me,...
Aug 13, 2014
We have a Seattle address, and mom just got back from sticking the fridge, pantry, freezer and paper supplies. It reminds me of moving into my first apartment.....complete stress!!!!!
Aug 09, 2014
Update on care: my blood sugars are constant in the 80's, creatinine clearance normal between .77 -.85, and INR I believe is at1.25, close to getting off last IV. I am having trouble getting the...
Jul 22, 2014
Thank you, thank you, thank you, to everyone who has donated to my fund! After our trip to Seattle this last Thursday and Friday, it hit home just how close we are, and how expensive this journey...