It has been quite a year so far. In Dec '15, I contracted RSV, which was serious...a virus with no treatment. It affected my heart function by reducing my ejection/fraction rate by 35%. This affected my breathing and stamina. I am just about back to pre-RSV strength tho I am still on a weight lifting restriction of 25 pounds. It took a good 6 weeks to get rid of the cough. I pray no one out there gets this RSV. I was super close to pneumonia. You all please keep healthy! :) HHL has told me to update this "blog" to keep you all informed of my health and needs. As many of you know me very well, I am very independent and very reluctant to ask for help at all. It was a tough task to deal with last year in doing so but I realized I cannot do this nor survive without help. A lot of Folks came forward with support and some fund raising benefits. I am ever so thankful, appreciative, and grateful. As HHL and I discussed, there is a common misconception that once a person is in remission, all is well. My added concern is my heart health - which is delicate at best. From a year ago, I am healthy now and able to function better but the medical bills and expenses continue to pile up as visits, meds, and tests are routine. Yes I am in remission. Yes I am not eligible right now for a heart transplant, and fortunately, I do not need heart bridge surgery. And I am able to enjoy life almost normally but..... I have osteoporosis as a result of the chemo and the steroids. My bones are that if a 85-90 year old. I have lost 3 teeth that had root canals. One was a small front tooth. I smile like Tom Selleck now! Any way I look at it, a "repair" is 2K, which I do not have. HHL Funds will assist with the tooth repair. I am 6 figures in debt with medical bills which I will more than likely never be able to pay off unless a lottery ticket pans out! :) I recently had to delay a needed prescription due to the "new" rules on co-pay and I did not have the money. I was encouraged to express all this to give you the real point of view in facts regarding my "fight". And not only my fight, but thousands of people in my boat. I am expressing this not to have you feel sorry for me or express sympathy. Rather I simply ask for your support in any form: prayers and/or donations, even support to other individuals need if you are able and feel comfortable to do so. Thank you so much for your kindness last year and now. Many Blessings!
Nov 04, 2015
November 4, 2015 It has been quite a year. With the diagnosis of cancer, I must be cancer free for 5 years for my heart transplant. I was given a a year or less to live without the heart transplant or bridge surgery. I told them a year ago Sept: "I am going to fool you all." (I do remain on the heart transplant list.) I have been in complete remission for 5 months now and my heart is strong enough that I have been "freed" to do anything I feel like with an 80 pound weight lifting limit. To celebrate my first moth off of chemo, my friend Ben took me to NC to white water raft and zip line in the same day. Probably not a smart thing to do but I did do it and had a blast. Folks have been so nice to me. My biggest thrill is that I was able to start riding Smokey again and that is big for me. Tho I am gaining strength every month, I still face treatment and medicines. I appreciate all of you that have supported me and hope you will continue to do so over the next 6 months or so. I expect to be strong enough to "work" in the Spring! Your support has paid for medicines and co-pays that I simply cannot afford too. The osteoporosis has taken it's toll on me, particularly with my teeth. I will not go into detail but an upper denture is my best, my logical path. Your support will help me get this done. I thank you all from the bottom of my heart! One lesson very much learned from the past year plus that I would like to share with all: Do not put things off until tomorrow - do them as soon as you can! Period! Smile! Always smile!. Blessings with much gratitude!
Dec 11, 2014
I wanted to report that things are going well. I had a check with both the Cardiologist and the Hematolgist last Wed, Dec 3rd. Heart is stronger tho the LVAD is still on the plate and in the near...
Nov 03, 2014
I am doing better and I am so thankful to those of you have supported me through donations, travel, and other things. We came up pretty short of our financial goal for 31 Oct 14 but I know we will...
Oct 23, 2014
Had a nice trip to SD/ND courtesy of my 3 best friends here in TN. This trip allowed me to see two of my best friends, Roger (ND) & Nolan (SD) and family. I also visited in SD with my friend Tiss...
Sep 22, 2014
Howdy Folks! Returned home form Vanderbilt this past Friday afer 17 days in house. Whew! It was tough for someone that is used to being outside. Many of you know the deal and the bargain I did not...
Aug 27, 2014
Vanderbilt visit the 22nd was eye opening. Tests results dropped from 15.1 to 10.9 on SVO2 test. That means I am getting less oxygen as 14 is a transplant benchmark/line. Anyone who has ever...
Aug 13, 2014
Next visit top Vanderbilt is on the 22nd of August. Blood work and some tests along with a Team Meeting! Vanderbilt has given me a super team!