Honestly, the last few days or a week or something like that, has been beating our ass. We’ve slept little and Jayde has incurred severe mouth and gut pain, nausea, rashes and swellings and exhaustion, all while conscious and quasi-conscious and seeming trapped in a claustrophobic hospital box. The rawness in her mouth, esophagus and belly is the culprit of a lot of the pain and the reason she’s needed the morphine pump and the reason she hasn’t been able to ingest anything, food, pills, or otherwise.
Yet, we endure knowing that the trick has already been laid down, the trap set, and the bate, if forcibly, taken. The overzealous parasite tastes the same poison Jayde’s been feeling in her whole body. Any cells that reproduce quickly (such as these cancer cells, hair cells, mucus-membrane cells) were sought out by the intense chemo for destruction. All of the cells that would otherwise help Jayde recover from the side effects have been wiped out too (her immune system cells also reproduce quickly). That’s why we saved some of these cells from before the chemo, and transplanted them back into her blood at the opportune time.
Blood labs indicate that the cells that will help build Jayde’s immune system back up are on the rise and taking hold. Also, her mouth is healing slowly, and overall, her tract seems to better each day now. She’s started drinking, and taking some oral meds, and today some sort of food is on the agenda.
She is still on her pain pump but is looking to wean off in the next few days. We are hoping to be out of the hospital by the weekend. We can’t wait to get our hands on Charlie…if we can catch her, that is, running around when her Grandma Robin wrangles her to Seattle. Again, we thank you all from the bottom of our hearts (a place we find in times like this) and we don’t forget the overwhelmingly awesome support system we’ve got at our back.
Evan and Jayde
Nov 10, 2014
Jayde and I are holding on strong in the hospital. She’s fighting through some pretty substantial side effects of the chemo conditioning she received prior to getting her stems cells reinfused on the 3rd (November). We’re taking the days as they come, keeping an eye out for one another, and most of all remembering that we just might have been born to struggle through this together. It helps that the staff here at the UW transplant team is pretty great.
We cannot wait to meet back up with our little runner, who has been under the watchful eye of not just a set of grandparents, but great grandparents too! We’ve heard Miss Charlie is becoming especially keen on her namesake great grandpa Chuck.
We expect for Jayde to start feeling better sometime later next week, in which case we’ll be looking forward to being discharged from the hospital, to get settled back at our apartment here in Seattle, for at least a little bit, before we can go home (hopefully for Thanksgiving!)
Evan and Jayde
Aug 27, 2014
An Update and a Thanks
We made it to and from Seatttle for the embroyo extraction and freezing. It all went well, and we look forward to the incredible possibility of having more children in the...