Great clinic appointment Wednesday! My lung functions are up by 20+%, even though I was coughing horribly during testing. I have had a cough all week, sloughing of lung stuff causes this. A lot of pain and my sternum wire has shifted from all the coughing and over doing. This is pretty normal and chest x-ray and CT show all is well. I'm on "house arrest" for a while. I guess I thought feeling good meant I could start resuming normal life but I was WRONG..... I thought I was taking it easy. However, Kay and I did do the mall after an appointment with my pulmonogyst in Portland where I was greeted with smiles and hugs. Nine years of being ill has ended and they were so happy to see me looking and feeling so much better. It was so nice to just mindlessly shop oxygen and exhaustion free. And, I didn't really buy much at all, the thrill was all in just walking and looking. Who knew? It's awesome to feel good and I can't wait to jump into life with both feet. I little more healing time is needed. I felt so bad for so long I was so used to it, now even when I'm weak and tired I still feel great in comparison. I'm waiting for another bronchosopy to be scheduled in the next week or so and dropped a few meds- no more Lovonox shots every night- yeah!!!!! First time I have been on pills only in over 5 years!!!!! Can't wait to ride that beautiful, chubby mare of mine. She is such a pretty lady and soooo sweet. Thank you Amy and Nora for giving her so much love. My surgeon says it will be a while before I can ride just to be safe, my chest has to heal. I was hoping for the last MHA show in September but he says NO!!!! Maybe some showmanship and halter classes. I'm counting on October beach rides, I'll be able to run like the wind with all of my pals for the first time ever- I can't wait!!!
Aug 13, 2015
My transplant happened on July 2nd and I am at home recovering. It was a difficult experience that I am so thankful for. My life has changed so much already. I am breathing normally and am healing more every day. I just can't believe how much better I feel and how lucky I am to have received such a precious gift. I ended up having the transplant done at the Brigham in Boston and the surgeon, doctors , nurses and staff were remarkable. As I said the experience was difficult but I had so much support every step of the way. There were things that happened that I never imagined and things I had imagined that weren't that bad at all. The pain was very manageable but the absolute loss of ability to walk was surprising. I was so weak I had to learn how to walk again. Fortunately it came back to me quickly and I am doing better than ever now. No more oxygen, iv medicine, redness or huffing or puffing. Soon I will be able to drive again and finally be able to ride my horse like a regular person!!!!! My heart and undying thanks go out to my donor and to their family for giving me the gift of life.
Nov 26, 2014
Thank you so much for all of the very generous donations. They are greatly appreciated, along with all of your prayers and well wishes.