Collin has been working really hard at being off the ventilator half the time! He is resting at night. We found out at a clinical appointment that his wounds are healing well, and he didn't need a serious skin flap surgery! They are healing well with negative wound therapy, and great care from the team at Select Specialty Hospital in Madison. Collin is on his phone often, and playing games on his PS4. We have begun the process of bringing him home, and look forward to the next step in his recovery. He continues to fight and keep a smile on his face. Thank you to everyone for all of your immense support, we are looking forward to the benefit on April 18!
Feb 24, 2015
Its been far too long since an update was posted! I am disappointed in myself for not keeping up with this, and much has happened. Since the last post, Collin was transferred out of state to Waukegan, Illinois because there were no beds available for vent care in Wisconsin. There, through Christmas, he received very poor care, resulting in deep pressure ulcers and malnutrition. His mom and I got him transferred to University of Wisconsin Madison Hospital, where he spent a month and a week recuperating and had a diverting colostomy do clear the area where his pressure ulcers are trying to heal. Collin has now been moved to Select Specialty Hospital to further heal his wounds, and work on weaning off of the ventilator. He has been doing great so far! about 7 hours on a trach mask, completely breathing on his own. After a year of not weaning, this is a huge feat and we are hopeful for great progress in the weeks ahead. We moved the benefit date to April 18, at Scandinavia bowling alley. I am currently seeking volunteers to help get out and spread the word of the benefit, a day of music, bowling, raffles and fun!
Dec 01, 2014
Collin got moved to Waukegan, Illinois, last Monday morning. He was previously in Pewaukee, WI recovering from a trach area reconstruction surgery. He has had issues with the area around his...