My day has finally arrived -- on July 15, 2016 I received my new liver. Surgery could not have gone any smoother. Came home yesterday after only 7 days in the hospital. I wanted to thank everyone who generously donated to my fund. My husband and I could not get through the last 2 yrs without the love and support of such wonderful family and friends.
May 19, 2016
Arrived at the hospital last night for the transplant only to learn that the vessels were too calcified for my transplant. So we were sent home to wait for the next call. Fortunately, they were able to use the liver for someone else.
May 18, 2016
Received a call this morning that they have a potential liver for me. Just waiting for the final call to come up to the hospital. This comes just as I was preparing to leave tomorrow for the Mayo...
May 09, 2016
Had my 14th ERCP on May 2nd and ended up back in the hospital for a few days. I wonder if I'm going to set a record for the number of ERCPs?!
Mar 29, 2016
Just found out I was granted 2 additional exception points. My MELD score is now 28. Moving up the list!
Mar 13, 2016
Had my 12th ERCP on Monday, ended up in the ER in the middle of the night Thursday night, admitted for another bout of cholangitis and then had 13th ERCP on Friday. Discharged Saturday afternoon. ...
Jan 17, 2016
Had my 11th ERCP. One duct too strictured to put a stent in.
Meld score remains at 26. Was told no more exception points will be given to me.
Nov 20, 2015
Had my 10th ERCP on 11/9/15. Number 11 is scheduled for January.
Sep 10, 2015
Effective 9/26/15 my new MELD score will be 26. It appears that my liver disease is now progressing to the right side of the liver & bile ducts. Now need ERCP with stents to the right bile ducts....
Jul 30, 2015
Learned on July 1st that the request for exception points was granted and my new MELD score is 23. Need to reapply again in September to keep the points. Also, had my 8th (and hopefully final)...
Jun 03, 2015
Had my 7th ERCP on May 20th. Also visited the Mayo Clinic in FL in early May and they have put me on their inactive transplant list given that I am more than a 6 hour drive from the hospital.
Mar 11, 2015
6th ERCP today. Next time may try keeping stents out.
Mar 07, 2015
MELD score raised to 9 on February 13th.
Feb 17, 2015
Today is the 20th anniversary of my first liver transplant. Hard to think I will have to go through this again.
Jan 24, 2015
Officially on the transplant list as of January 14, 2015. MELD score is 7. And so the waiting begins...
Dec 30, 2014
Received official word today from TJUH that no issues raised when my case was presented for re-transplantation listing. Now just need to wait for the official letter and MELD score from UNOS.
Dec 21, 2014
Underwent my 5th ERCP with stent changes on December 11, 2014. Hopefully, these will last until March!