I love you all for what you have done for me. With the $43,200 raised by you guys, I was able to attend Project Walk for 1 1/2 years, participating twice a week for 3 hours a day. This cost me $100/hr. Quite staggering. However, the gains that I saw at Project Walk were priceless. I gained activation of some tricep, lower back, abdomen, oblique, glute, and hip motor function. My hip flexors are the weakest and my back extensors are the strongest.
A new treatment that I want fund costs $50,000 for the procedure alone, not including travel and living expenses overseas. This treatment will have to be followed up by extensive therapy and participation at the paralysis recovery center, Project Walk. For this, I have extended my fundraising goal to $103,200.
In the meantime, I will be doing aggressive strength training and continuing my fight for independence. My hope is that the procedure will become more refined by the time that I am able to receive it. A portion of the treatment uses stem cell transplant, which is still in a very unsophisticated stage.
Healing is never guaranteed with spinal cord injury. Professionals will tell you that it is not likely. I hear this from my physicians all of the time. Truthfully, they are right, it isn't likely, but none of this matters to me. I will heal some more and one day I will get my body back. This is what I live for
Apr 14, 2016
I have a little bit of preserved motor function in both of my hip flexors. I've been skeptical all year long but now I'm finally convinced! The only way to produce a specific movement on a Hip-Glute machine is to activate your hip flexors. This movement brings your knees to your chest. I've been able to do this every time I've tried it. I've attempted it during four different sessions at Project Walk.
I cannot feel the contraction b/c it's so faint (& most of my sensory function below my level of injury remains paralyzed)
The right side > the left side It's not much but I'm excited for it!
Apr 10, 2016
There hasn't been too much going on with me lately.
I reapplied to UHCL on Saturday. I am waiting to enroll for the Fall semester.
The Botox injections in my ankles have not improved my...
Mar 31, 2016
There is a chance that my right hip flexor is firing. We have been questioning this for a while but today it seems to activate. We aren't one hundred percent sure about it.
It's very possible...
Mar 22, 2016
I am making a switch; my manual chair will become my permanent chair. The manual chair is much more difficult to use than my power chair so I will need to start therapy again. I'm scared that I...
Mar 15, 2016
Next month, I will enroll in one course for the Fall. I will retake a course that I have already completed so that I can learn the modified way of doing things... I have five courses left in my...
Mar 07, 2016
I got my Botox injections last Friday in my ankles. I decided against injecting my lower back. It would have been too risky. My core is already so weak. I have thought this over so many times. Now,...
Feb 22, 2016
My boyfriend, Erik, has helped me to understand something about life. Let me put it into words because it is something very powerful for me:
It's most important not to fear the future because...
Feb 17, 2016
Experiencing sharp, itchy neuropathy in my thumbs today!! It's painful!!! I may need to switch up my nerve pain medication..
Feb 14, 2016
I am getting Botox injections in my ankles and lower back muscles next Friday, February 19th. The goal of this procedure is to reduce spasms.
The plan is to block nerve receptors to muscles in...
Feb 10, 2016
I was finally discharged from therapy today. I have met my goals for this round of therapy! Now, I will focus on strengthening for the next sixth months. I will attend personal, 1 on 1 sessions...
Feb 01, 2016
I have met my first fundraising goal!! :) I am so blessed that money will not be an issue in my fight against paralysis during the first two years at Project Walk, paralysis recovery center...
Jan 08, 2016
About 4 months ago, a paralyzed friend of mine went to Thailand and got stem cell treatment (from the umbilical cord of a baby). He has been traveling around the world to participate in studies...
Jan 04, 2016
I will be discharged from both occupational and physical therapy in about one month. I am able to put on and take off loose-fitting pants with minimal assistance. I can transfer onto an unlevel...
Dec 31, 2015
I will begin seeing a social worker, who is also a counselor, this month to help me begin to reintegrate into the community. I am so thankful that I will not have to do this alone. There are a lot...
Dec 18, 2015
I can feel very faint pain sensation in my fingers. This is something that I could already feel in my thumbs, which have much stronger sensation than the other fingers. My index fingers have the...
Dec 12, 2015
In my therapy sessions, I can take off/put on loose pants with minimal assistance. I can't do this at home yet as I do not have a bed with accessible controls. I need this in order to be mobile in...
Dec 08, 2015
I started my home exercise program again. My triceps have become noticeably stronger. I use a 2 pound weight for my right arm and a 1 lb weight for my left arm. In the past, I was unable to use...
Dec 07, 2015
I put on a medium-sized jacket in under two minutes.
Also, I am able to place a slideboard underneath me without any assistance. I make a small modification to the slideboard by adding one...
Nov 30, 2015
I am able to lightly sweat on some areas now. It's very sporadic but it is return. Return of autonomic function.
Nov 22, 2015
I was able to put on a loose jacket (size:large) today by myself. I was able to trigger hand spasms, which created enough tightness in my hands so that I could use them to hook onto parts of my...
Nov 19, 2015
I have not been posting lately because things have been going pretty slow. I have not had any new return. I have gained just a little bit of strength. I'm still waiting on many pieces of equipment...
Nov 05, 2015
Finally, I am successfully dieting and losing a little bit of weight. My doctor has been asking for me to do this for over 8 months now. Since I was injured, I have gained 20 pounds. I am a...
Oct 27, 2015
I want to give a very special thanks to everyone who has been contributing to my site every month and also to those who have made contributions in the past. This means so so much to me. You are the...
Oct 20, 2015
Today, I will be riding the FES (functional electrical stimulation) bike in physical therapy at TIRR. Electrode pads will be placed on my quadriceps, hamstrings and glutes. The goal is to possibly...
Oct 15, 2015
For the past three months, I have had an increase in energy and activity in my lower back and body. My trainers at project walk are thrilled about it because some of my reflexes are in the form of...
Oct 02, 2015
Some days, I spend about thirty minutes of my sessions at Project Walk doing sit-to-stand exercises with electrical stimulation. The stimulation contracts my leg muscles in a way that will raise my...
Sep 30, 2015
My obliques and lowest abdomen muscles are activating! My sitting-balance is now better than ever. I am still a little wobbly whenever I raise my arms up but I have been told by many therapists and...