I came home from the hospital Friday evening and am so happy to be out of there! I am hoping that I do not have to go back for a long time! My home nurse came today to draw blood and she was impressed at how fast the blood came flowing out. Usually it was a lot of work, I would have to be positional (one arm up, one leg bent just right....or on my side with one arm up) which was a pain but not anymore. I have a follow up appointment with my doctor at Georgetown tomorrow. Hopefully they say that I can start eating again because I miss my bananas and mixed fruit oatmeal. All I am taking by mouth is pedialyte. Nana is making me another broviac bra since my port is in the center of my chest instead of the upper right side. Today is a good day and I thank God for all the blessings in my life. =)
Jan 29, 2015
I am still in the hospital...I went in because my potassium was too low and ended up having to have surgery on my Broviac line. When one of the nurses was drawing blood it broke so I had to have immediate surgery and get that fixed. It was scary but I put on my brave face and knew that everything would turn out to be alright. We always have to count out blessings though and luckily they were able to use the same vein as before and the surgeon was able to just rewire the existing Broviac. The doctor's are saying I can come home tomorrow afternoon so fingers crossed it still happens that way!!
Jan 27, 2015
Hello world!! I have not written lately because I have been extremely busy!! Still no word on my transplant but we are still waiting patiently. My Nana made me a Broviac Bra so I have not been...
Jan 03, 2015
Good Morning world! Today is another exciting day!! I am still getting over the flu (Mommy took me to the local hospital a few days ago because I had a fever of 104.7) I have a deep wheezing cough,...
Jan 02, 2015
My name is Grant, I am a 10 month old on the transplant list for a small intestine. I was born with short gut syndrome gastroschisis, which means that my organs were formed on the outside of my...