December 13, 2015
omg, we have a mere 35 more days until we fly out of Houston for Moscow! Wow!!! Exciting indeed. We have our VISA's, passports.....it's getting real
November 12, 2015
things are moving along for our January trip to Moscow for treatment. We have ordered our VISA's and that was a little over 1,500 for 3 of us as my sister Martha will be traveling with us. Someone graciously donated their airline miles for our flights! wow, what a blessing!!! I cannot thank her enough. Our goal is to take care of this and spend some time paying it forward! So many people have given of their time and assets to help us help Tom....
We have the hotel booked. So things are looking up! Yeah
October 17, 2015
We are out and about to take Mila to look for a pumpkin for Halloween. She is so silly. After a rough morning I am happy to say Tom is feeling good and we are able to enjoy this lovely fall weather. ❤️
September 27, 2015
Hello! We had our Car Wash/Silent Auction yesterday and it went really well. Our friend, HSCT Warrior and organizer, Cheryl McCandless did such a phenomenal job!!! There were many volunteers known and unknown and soon fast friends in a kinship to help Tom on his journey to HSCT and a healthier quality of life.
Gods blessing on all involved wether there or through prayer and spirit. We are truly blessed and humbled
September 18, 2015
Today is just a reminder of how badly Tom needs HSCT. He has been up since the wee hours of the morning in pain due to his back... He has taken the allotted amount of pain meds and so has given in and taken a muscle relaxer. The upside is it will take away some of the pain, the downside is he will likely sleep the rest of today and the better part of tomorrow.
September 10, 2015
hello all
It has been nothing short of an emotional struggle the last 3 weeks. Our world has been turned upside down.
God has blessed us in so many ways and I am unsure of where he is leading us. Everything is still a go for Russia and we have our Hotel reserved, working on Airline tickets, and building up Tom's funds. We did a Avon Fundraiser and we are working on one for Mary Kay with a very special friend.... A new tshirt is in the works and that shall be out in the next week or so, yeah!
We went to see the War Room and what a great movie that was. Learning to turn everything over to God is hard for one who can be a control freak but it is essential. All things are possible through God.
Have a blessed weekend and spread the word about HSCT. Save a life. And for those who cannot have HSCT pray for relief of pain. This kind of pain is horrible and defeating.
Thanks....hugs and prayers,
Mary
September 4, 2015
There has been a lot of change and sadness in our lives as of lately. A dear friend of ours who had cidp has passed away and the other is just far to personal to post but we are in great need of prayers to make it through this most difficult time.
Thank you,
Tom and Mary
August 13, 2015
Hello everyone! What a blistering heat we have had for the last 2 weeks, we were relieved to see the rain come out as everything around us is turning brown.
We received our passports in the mail, we have booked the hotel in Russia and a friend is looking into the flights for us... Life is good sometimes...
Mila is growing up so fast, learning new words like wild fire and is becoming more and more able to hold a conversation and follow directions. It is so cute, the Pantry has been one of her favorite rooms in the house as she likes to play in there rearrainging the cans and boxes... she is a little ocd but lately she has gone in there and gone "shopping" for us bringing out a Kroger's shopping bag with packaged fruit and small boxes of light food and brings it to one of us... LOL she is the best.
Thank you for your love, prayers and generosity,
Mary
July 29, 2015
every Wednesday we have Adoration for 2 hrs. Today is an unusual one as I step inside the Church by myself. Tom is just so tired that although the alarm woke him he feel straight back to sleep. He slept most of yesterday as well, so I can see that his body is winding down as we get closer to his ivig treatment next week.
His new thing is swollen feet and they hurt. I am not sure if it is CIDP related or maybe a medicine reaction. He hobbled along but has kept pretty positive.
Thanks for all the prayers and good wishes.
July 19, 2015
OK so we have hit a new phase in Tom's do's and don'ts list or it has been added to my honey to list...lol mowing the lawn. sounds easy enough but it kicks his butt now; not only for the rest of the day he mowed lawn but the next day too..
July 8, 2015
Fox News just left the house. What a wonderful, blessed surprise. Tom did great and Ms. Ashley Johnson is a gem...
Let's get the word out about CIDP and HSCT. Let's get Tom to Russia!!
July 2, 2015
hello ☺
we are on our way to meet up with some friends for some.more fundraising planning...after Tom's pain management doctors appointment.
God's blessings ❤
we still have a ways to go please share Tom's page and let's do this!
#stopcidp #disabledvet
June 28, 2015
Well it has been almost a week since I posted and I apologize for the delay. We had a grand time at Mooyah's. We were able to meet up with family and friends...what great support. There was support from many others who came out throught the day and all I can say was the blessing was the surprise interview done by Ashely Johnson at Fox 26 News... She was so sweet and patient with us. Tom did really well and I am so proud of him. However I do not have a link to share at this moment.... We have reached out to see if we can get one as that would be super to share.
Anyhow, we have a long ways to go. Please continue to share our story with everyone you know. I promise it will not be in vain. God's blessings,
Mary
June 21, 2015
yeah!! The day is here. The day of Mooyah.... Come one and all let's celebrate the miracle of Tom.... And the miracle of hope for a better life.
All day 11-9.
June 10, 2015
Hello everyone!!! What a day this is. 29 years ago Tom and I married in San Angelo, TX. It is hard to believe it has been that many years but I wouldn't trade it for anything. They did say better or worse and God knows Tom has put up with some of my worst days... lol I love you Tom!! I will always love you.
I will find a way to get you to Russia... I promise!
June 9, 2015
Hello Everyone:
We are getting closer to our date with the wonderful folks at Mooyah's. Please save the date: June 21... ALL DAY!!!
Print up a flyer and have a great burger or shake or both...YUM
Hugs
May 24, 2015
for every piece of jewelry sold Bravelets sends Tom's campaign $10.00. That is awesome.... From now til the 25th of May receive 10% off your purchase using "BRAVEHEROS" in the coupon section.
www.bravelets.com
May 16, 2015
the fight goes on. I have signed up a request for a fundraiser day/night with Mooyah's and believe me when I say their burger are good.
May 12, 2015
It was a pleasant surprise to see the barometer moved to a higher level this morning.... :)
It is also nice and calming to see these sweet messages left from family and friends.
As we continue through this journey I would like to say thank you all for your love and support.
May 6, 2015
Hello everyone!!
Just a little update. Russia really cannot come soon enough. Tom is having more difficulty walking. I am glad that we have so much support. Now we need this support put out to one and all.... share, share, share. Let's get Tom to Russia.
Russia is our Goal.... Stopping CIDP is our Mission!!!
With God's help we will get there.
Love,
Mary
April 13, 2015
Just an update. sorry I have been out of it. Seems the whole household was sick for the last two weeks. Tom was put on a z-pack and had to delay his ivig treatment for a few days in order to be healthy enough to have it done.
He is currently at the VA Medical Facility in Houston, Tx getting this done and I am sure it will be of a relief to him as his legs havebeen hurting him and not allowing him a good nights sleep.
Blessings to everyone... :) Mary
