fact: I always give too much information. When people ask, how's it going? I will spare you the details of the difficulties we face daily on this road, however we are making compromises to prioritize Ethan's physical recovery, so the question is, well do you think it's worth it? I will never respond with a NO. What I will tell you is this, there are a lot of compromises we are making, but at the end of the day I will always be grateful that we've taken advantage of this opportunity to push for a year of physical recovery for Ethan, and I will always push for more healthcare for Ethan. My daily frustrations involve the health implications that we haven't had the resources to address. For example while we put all our resources into physical recovery he suffers with other systems failing which interfere with pretty big ADL's or (activities of daily living). There are so many hoops to jump through to get access to healthcare post SCI. And there are so many suffering with SCI for whom recovery it is not an option at all. Prayers that we will become more whole and equal as a nation and opportunities to heal and reduce suffering will become within reach of us all.
Jun 23, 2016
We had a great time at our event, Move Through It, last Friday June 17th. The evening marked the 2nd anniversary of Ethan's spinal cord injury and we couldn't have asked for a better way to spend it and celebrate all of our accomishments and spirit, amongst friends celebrating strength, patience, and perseverance in the midst of challenge. Together we raised enough money for Ethan to access 35 more hours of intense therapy. We're both super thankful for everyone that showed their support either at the party or through donations of refreshments, raffle items, and their time and energy helping to put all the pieces together.
Apr 20, 2016
As the 2nd anniversary of Ethan's Spinal Cord Injury approaches on June 17th, I want to take a moment to update you on his recovery....
Ethan's Progress: Due to Ethan's...
Dec 02, 2015
Ethan has been home from Project Walk in California since September 2nd and has been making some gains, working daily at the YMCA or with one of the many professionals that have donated their time...
Sep 23, 2015
Thanks to all for your donations and the help we raised a few thousand dollars towards Ethan's recovery last weekend at the Great Media Garage Sale. It was quite an event with an amazing turnout....
Aug 06, 2015
Stef has been writing about her experience as partner in the SCI recovery process: